HCMA Hill Day 2025
On February 15, 2024, the Hypertrophic Cardiomyopathy Association hosted our first Congressional Legislative Briefing entitled “Getting to the Heart of Genetically Inherited Cardiac Disorders.” It was well received, so we are returning again this year.
This event aims to educate Members of Congress on bipartisan issues that impact the HCM patient community and those with related heart muscle disorders.
2025 Briefing Details
Date: Wednesday, April 9, 2025
Time: 5 PM - 7 PM ET
Location: Banquet Room 2075, Rayburn House Office Building, Washington, DC
Briefing Topics:
- Patient stories including a mom who lost her child due to delay to diagnosis, a young man who ended up in the ER after a generic drug switch, and the story of a young man denied Camzyos after successful treatment for 2.5 years (insurance company suggested he try a calcium channel blocker instead)
- Generic Drug Quality - a review of the US Department of Defense data (link to 11-8-24 HCMA Tales from the Heart Podcast on Generic Drug Quality)
- David Light, PharmD, Colonel (Ret) Vic Suarez
- Step Therapy/Preauthorization
The HCMA supports the following:
- Support of Health of Women
- MINI Act
- The Treat and Reduce Obesity Act
- PBM Reform
- The Safe Step Act (H.R. 2630) (S. 652)
- Hearts Act Appropriations
- Orphan Cures Act (H. R. 946)
- EPIC Act (H.R. 1492)
- 340B Reform 66
- Access for all patients (Medicaid)
- Why screening for HCM and other heart disorders must become the norm – especially among underserved populations and those entering Medicare.
If you are interested in joining the HCMA on our 2nd Hill Day, please reach out to
Julie@4hcm.org,