Hypertrophic Cardiomyopathy Association International
Helping Patients Worldwide
Hypertrophic Cardiomyopathy Association International (HCMAi) is a division of HCMA dedicated to reaching out to other countries with HCMA’s tremendous library of information and tools for patients and healthcare providers. These are now being translated into languages that can help people around the globe improve their understanding and ability to manage their HCM journey.
International Partners
Among the 16-33 million individuals with HCM worldwide, a significant number—likely the majority lack adequate access to up-to-date information regarding diagnostics, treatment options, or medications.
International Goals
- Support HCM patients everywhere
- Grow awareness of HCM worldwide
- Help patients find advanced treatment
- Build advocacy and support networks
- Collaborate with existing organizations
- Create structure where needed
- Spread the word
Unlock Your Potential: Join Our HCMAi Affiliate Program Today!
Step One: Click here to fill out our HCMAi Affiliate Information Sheet
Step Two: Bring People to the Table
Patient Spokespeople
• Tell about the HCM journey in that
country
• Influence governments and payors
Healthcare Provider Champions
• Speak out for better professional
training
• Provide and support more access to treatment
Sponsor Representatives
• Share understanding
• Make introductions
• Provide financial support
Step Three: Create Custom Resources
Customized by Country, Based on:
• Healthcare system
• Centers of Excellence level care locations
• Language
Educational/Advocacy Resources
• Region-specific networks
• Patients
• Healthcare Providers
• Clinics
• Custom Web Pages
• Special Groups on Social Media
Step Four: Invite the World!
• Talk about HCMAi in your own channels
• Link to HCMAi
• Refer international contacts to HCMAi
Juliana Crem
International Coordinator
juliana@4hcm.org
