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Gloria Jeanne Fritzler McMillian

I was told a year ago when diagnosed in hospital to implant a defibbulator I chose not to it really bothered me to put something in my chest to stick out and did not think it would make me better. Is it necessary? ... See MoreSee Less

1 day ago

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Mary Delmonaco

Wonder if HCM this is second sudden death at Dartmouth. ... See MoreSee Less

1 day ago

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Hypertrophic Cardiomyopathy Association

Hello to all - First of all Happy Friday! Now to finish up the weeks work. If you participated in the survey THANK YOU. IF you have not - please do! If you have requested that the HCMA office contact you - dont laugh - but we sent you a follow up survey.... we received more than 100 requests for calls - so we need to schedule them - we are asking you to reply to the survey with best day of week and time zone and we will create a schedule to address your questions. there are only 6 questions on the follow up survey so dont worry - it will only take a minute to complete! Thanks and have a great weekend!!! ... See MoreSee Less

4 days ago

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Hypertrophic Cardiomyopathy Association

Many thanks to the over 900 people who have participated in the HCMA survey so far - our goal is lofty - 2000 by the end of April. We are off to a great start in only 2 weeks. Don't wait... take the survey today!! Thanks to all and here is some late breaking news - please share this on your page - raise awareness spread the word and help save/improve a life! Click here: http://vovici.com/wsb.dll/s/ca61g54441 ... See MoreSee Less

6 days ago

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WIRED4LIFE

Please do the survey, read the results, be a part of this IF you have HCM Hypertrophic Cardiomyopathy Association ... See MoreSee Less

2 weeks ago

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Hypertrophic Cardiomyopathy Association

In one week: 755 awesome people took the HCMA survey!!! Thank you all. We would like to have 2000 participants - so we are going to ask again for you to post this on your Facebook page and remind your HCM friends and family members to take the survey. Hey-- Idaho and DC HCM'ers please speak up you are the only two states missing!! click here:http://vovici.com/wsb.dll/s/ca61g54441 ... See MoreSee Less

2 weeks ago

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Hypertrophic Cardiomyopathy Association

Todays last teaser on the HCMA survey. At this time we have over 640 participants - we are hoping to reach 2000. Please invite friends and family to LIKE the HCMA on Facebook and visit us online at 4hcm.org and encourage those with HCM to complete the survey. The more we learn the stronger we ALL become! ... See MoreSee Less

2 weeks ago

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Hypertrophic Cardiomyopathy Association

Share the link.. save a life! ... See MoreSee Less

2 weeks ago

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Hypertrophic Cardiomyopathy Association

Please share this link - it could save a life! ... See MoreSee Less

2 weeks ago

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HCMA Community

Police, Emergency Service or Defence Force People ...

Hi all, First of all, I would like to thank you all for creating a community for people to help understand this disease. I am a Police Officer...

What's the physiology of day after exercise f ...

Hi, I recently was weaned off of beta blockers because I had such severe fatigue, I was basically non-functional. I am post myectomy 1 year and on...

Scar treatment.

Anyone use Kelo-cote or one of it's look-a-likes for treatment of scars post-op? A few years ago my wife used it when she had plastic surgery on her...

EP study possible ablation?

Hi everyone, my 20 y.o. son was diagnosed with HCM last year. He has a septal measurement of 32mm and was found to have a genetic mutation. He...

PVAI Ablation

Hi everyone. Just had my 2nd PVAI ablation done in Austin, TX. It went well. The first one was in 2010 for afib. This was one was for aflutter. ...

HCM, but not genetic?

Hello everyone, I seldomly post anything on here, but I'm confused by my diagnosis. I was told I have HCM however, not a single person in my family...

Radiofrequency ablation?? Terrified and confused

Hi everyone. I'm so sorry if this is a long post... I am 26 and I was diagnosed at 12 and really had no issues until I was about 20. For the past few...

Verapamil and chest pain

Prior to being treated for HCM I had a soreness in the left center chest area. Not pain just a soreness / light discomfort. Now into the 2nd year...

new meds

I have been seeing an internist for an upper repertory infection for about two months. He had done a lot of things trying to get the cough to go...

Brought back to life by his ICD - Man in body bag ...

http://www.cnn.com/2014/02/28/us/dead-man-comes-back-life/

Just diagnosed and confused...

For years whenever I ran I would get out of breath quickly. I switched to cycling and while I wasn't winning races I could go any distance. I had...

Waiting for pre op..

Hello, I have been lurking around the site for awhile now so I figured I would share a bit with you all. I way diag. with HCM when I was around 10...

Outflow tract gradients after myectomy

What has your experience been concerning outflow tract gradients after myectomy? In a 3 mos post-op echo my gradients were much reduced to 14mmhg at...

HCM centers

Hi I was diagnosed 9 years ago with hcm. I have worked to manage my condition with local doctors but still have problems that my cardiologist hasn't...

6 months post op and gradient returns with a venge ...

Has anyone had this happen? My pre-op (myectomy and mitral valve repair) echo showed 'severe' regurgitation and a gradient >120. 1 month post op...