Serving the HCM Spectrum Disorder Community Since 1996

HCM often runs in families - Please remember to encourage your family members to be screened.
Each year thousands of lives are lost to HCM we remember those lost and hold them in our hearts everyday.
With proper management a long life is possible with HCM!
These are the true "Faces of HCM", some living, some gone, all amazing and never to be forgotten!
Support, advocacy, education and building strong Centers of Excellence programs - Thats what the HCMA is all about!
Over 1 million people in the United States have HCM. Worldwide over 1 in 300 have HCM or carry a gene for it.
HCM can be diagnosed as early as birth, but more commonly during puberty.
Thankfully with proper care and management most HCM patients can live long and fulfilling lives!

Welcome to the HCMA

The HCMA is the preeminent organization improving the lives of those with hypertrophic cardiomyopathy, HCM, preventing untimely deaths and advancing global understanding. Founded in 1996 we are committed to providing support, education, advocacy and advancing research, understanding and care to those with HCM. This website will provide information, support options and member services.

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CLINICAL TRIAL NOW RECRUITING

The HCMA is conducting this voluntary survey about investigational drug studies sponsored by MyoKardia Inc., a pharmaceutical company, in collaboration with several clinical sites for the purpose of a clinical trial on a new compound, mavacamten, for use in those with hypertrophic obstructive cardiomyopathy (HOCM) and hypertrophic cardiomyopathy (HCM). Please take a few moments to learn more by clicking here.
Thank you!