Serving the HCM Spectrum Disorder Community Since 1996

Welcome to the HCMA

The HCMA is the preeminent organization improving the lives of those with hypertrophic cardiomyopathy, HCM, preventing untimely deaths and advancing global understanding.   Founded in 1996 we are committed to providing support, education, advocacy and advancing research, understanding and care to those with HCM.  This website will provide information, support options and member services.

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CLINICAL TRIAL NOW RECRUITING

The HCMA is conducting this voluntary survey about  investigational drug studies sponsored by MyoKardia Inc., a pharmaceutical company, in collaboration with several clinical sites for the purpose of a clinical trial on a new compound, mavacamten, for use in those with hypertrophic obstructive cardiomyopathy (HOCM) and hypertrophic cardiomyopathy (HCM). Please take a few moments to learn more by clicking here.
Thank you!
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Survey Opportunity

Emily Callahan, a Masters student studying Genetic Counseling at the University of Maryland is conducting a survey.  Since the University of Maryland is a Recognized Center of Excellence, the HCMA is helping her circulate this survey.
 
Does someone in your family have Hypertrophic Cardiomyopathy (HCM)?
 
The Masters in Genetic Counseling Program at the University of Maryland
School of Medicine is conducting a new research study to better understand the factors that impact the decision made by at-risk family members to have an echocardiogram and/or genetic testing for Hypertrophic Cardiomyopathy (HCM).
 
We need your help and want to hear your story!
 
*Participate from the comfort of your home*
The study includes just a survey.
 
If you are interested in learning more about this study, please click on the link below:
https://www.surveymonkey.com/r/LHCRGFF