Last week, I had the privilege to moderate a panel, “Novel Nursing: Helping Patients Adapt to Medical Innovation,” on the challenges and opportunities created by Myosin Inhibitors in Hypertrophic Cardiomyopathy at the PACH Cardiovascular Health Policy Summit in Washington DC. I was joined by Sue Philpott, RN, BSN – Corewell Health in Grand Rapids, MI, and Amy Beatty Marzolf, CRNP, MSN – Hospital of the University of Pennsylvania, who are impressive and articulate.   

At the summit, I also met Scott Barrokas, a member of the HCMA Legislative Committee, who attended the Summit to learn more about patient advocacy in a legislative setting through sharing experiences and stories.  It was a great experience as we can all learn to improve patient care and outcomes by sharing our experiences and providing a voice to patient needs. As a member and employee of the  Hypertrophic Cardiomyopathy Association , I hear these stories daily, but many of our legislators don’t, and sharing is caring.  

For those of you who would like to watch the Summit, it is available online:  https://youtu.be/Ugw7qEzv1R0

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