Lisa's original heart, now a teaching tool for others to see HCM in real time!



**Celebrating Nine Remarkable Years** Today, I find myself reflecting on the profound significance of the ninth anniversary of my heart transplant. This day has become an integral part of my journey, a moment that invites deep contemplation. Each year, I’m reminded of the interconnectedness of our lives and the importance of remembering those we hold dear. Last year, as I marked the anniversary of my sister Lori's passing, my thoughts extended to all who interacted with her—her children’s teachers, coworkers, family, and even the neighbors who wondered about her absence. In many ways, Lori and Brandy are tied in my mind in a unique way. Keeping Brand and her family close in my mind and in my/heart. 

I vividly recall what my morning was like nine years ago, shortly after 8:00 a.m. on February 2nd, Groundhog Day—a date that has taken on new meaning for me. In this moment of reflection, my thoughts travel to Brandy’s family and what they might have been navigating on this day 9 years ago. I wonder how their day unfolded, where Brandy’s body was, and the decisions they faced regarding burial or cremation. As the clock struck 8:12 a.m. on the East Coast, I picture a scene reminiscent of the morning that followed Lori’s passing. Our family gathered, yet the atmosphere was heavy with grief, as we realized that Lori was no longer with us. I can’t help but think that Brandy's family experienced those same heart-wrenching moments. I sincerely hope they found solace in one another’s presence, surrounded by loved ones as they faced their sorrow and began to envision a future that suddenly felt so different. At just 32 years old, Brandy had so much life ahead of her. Though I may never know the details of her passing, I have spent countless hours contemplating its impact over the last nine years. This year, I feel compelled to honor Brandy by viewing this day through the lens of her family's experience. Around 8:16 a.m., they may have received the heartbreaking news that the procedure was complete, and Brandy would be transferred to a funeral home. My heart goes out to them as I imagine the whirlwind of emotions they faced—confusion, sadness, and perhaps even anger. From the heartfelt letter I received from her sister, Mandy, it's evident that they have faced immense challenges, especially with Brandy’s daughter on their minds. I do not know the age of her daughter, but I hold onto the hope that one day I might have the opportunity to meet her, as I believe in the healing power of connection.

Today, as I celebrate nine years of life while keeping Brandy in my heart, I recognize the immense weight of this milestone. My thoughts are with Brandy's family, and I hope they can find comfort in the profound decision they made to allow her to become an organ donor. I hope they can see the positive ripple effects that stem from their loss, understanding how their choice has touched many lives—an emotion I resonate with deeply as I reflect on my sister Lori’s own decision to donate her kidneys and liver. I’ve tried to keep track of the experiences and accomplishments that have blossomed for me since my heart transplant. While it’s impossible to recount every moment, I can share that I’ve had the joy of meeting my daughter’s boyfriend, my nephew's wife, and my niece's husband. I cherish being able to be here to see Lori’s grandchildren,  my two great nephews, Xander and Jet, and my two great nieces, Gloria and Lena. I’ve also forged invaluable connections with the dedicated staff at HCMA—Elena, Sara, Pam, Claudine, Demi, Linda, Arti, Michelle, Juliana—and countless passionate heart advocates around the world. Witnessing the historic launch of the first labeled drug for hypertrophic cardiomyopathy (HCM) and the advent of innovative genetic therapies has been awe-inspiring. Most importantly, I’m grateful for the opportunity to connect with wonderful individuals like you—the readers who share in this journey. Reflecting on the positive transformations in the field of HCM over the past nine years is astonishing. This February also marks the 30th anniversary of our organization, a testament to the resilience and dedication of all involved. Who could have envisioned that the girl who once felt anger and sadness would eventually channel those feelings into meaningful change?

The landscape of HCM today bears little resemblance to what it was three decades ago. Whether you read this on February 2, 2026, or at some point in the future, I encourage you to take a moment to reflect. Find a quiet place, gently place your hand over your heart, and connect with the life within—whether it emanates from a perfectly functioning heart, a battery-operated device, or a heart that began its journey in someone else's chest. Remember, you are alive, thriving, and capable of making remarkable contributions to this world. May God bless you, Brandy, Mandy, and your entire family. Not a day goes by without my heartfelt gratitude for each and every one of you.

Beyond grateful!