Hypertrophic Cardiomyopathy Association™

The Hypertrophic Cardiomyopathy Association is a not for profit 501(c) (3) organization formed in 1996 to provide information, support and advocacy to patients, their families and medical providers.

Lisa and Becca on CBS Evening News!

Suggested Pre-Participation Screening Questions for Your Children »

      Pediatric Sudden Cardiac Death                                                 Risk Assessment Form   Ask these questions (or have parents complete) at periodic times during well child visits: Neonatal, preschool, before/during middle school, and before/during high school

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2007 update on the Genetic Nondiscrimination Act (H.R.493, S.358) »

Learn more about this important legislation and take action!. Genetic Information Nondiscrimination Act (H.R.493, S.358)  is a bill that will prohibit discrimination on the basis of genetic information with respect to health insurance and employment. It was introduced to establish basic legal protections that will enable and encourage individuals to take advantage of genetic…

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Preclinical HCM Study Seeking Participants »

Researchers at Brigham and Women’s Hospital in Boston, MA are currently enrolling participants for a research study of Hypertrophic Cardiomyopathy (HCM).

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Project "Get the Word OUT!" »

Your chance to help educate the medical community about HCM.. A Call to Action - it is time to “Get the Word OUT!” ™    Have you ever thought to yourself “what can I do to help educate the medical community about HCM”? We know many of you have and we have created a program to…

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HCMA on NPR! »

Listen to the MP3 recording from Tue, Sep 4, 2007 -- 10:00 AM.

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11th Annual Meeting »

May 30 - June 1, 2008 - Morristown NJ. The 11th Annual HCMA meeting will include two components a patient/family friendly agenda and a  CME / Nursing contact hour program - all in the same room.  If you are unable to download the PDF version of the agenda call the HCMA office to have one mailed…

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2008 HCMA Meetings around the country »

Throughout 2008 the HCMA will be participating in a number of educational meeting across the country.  If we are not planning to come to your community - contact the office and we will work on creating a program in your area in the future.  …

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The 10th Annual Elizabeth T. McNamee Memorial Run »

Come out and enjoy your Mother's Day Morning and support the HCMA on May 11, 2008 in  West Islip, NY

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HCM for Patient, Families and Interested Physicians 2nd edition

By: Barry Maron, MD and Lisa Salberg, President, HCMA

NOW AVAILABLE! To order your copy, click here!

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New HCMA Survey for Patients and Families

Journal Articles of Interest to the HCM Community

	Signifcance of Papillary Muscle Abnormalities Identified
	SCA in HCM in the Absence of Conventional Criteria for High Risk Status
	Other Journals
	JACC - Journal of the American College of Cardiology
	Circulation - the Journal of the American Heart Association

Information for the Media

Includes Media Advisories

Media Information

Support the HCMA!

Let the beat go on!

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Medtronic is a proud sponsor of the "Let the Beat Go ON!" campaign.

 

Also visit Medtronic Foundation to see the wonderful work they do!

 

 

 

Learn more about Sudden Cardiac Arrest and lifesaving treatments. Medtronic - What's Inside