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We are hosting a family walk, fun day in Highland IN. Hope to meet other heart warriors or family members. Message me if you're interested in joining our event.
Proceeds go to Children's Cardiomyopathy Foundation
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1 hour ago  ·  

Hypertrophic Cardiomyopathy. 1994 Friday of Memorial Day weekend my mom went into cardiac arrest. If we all had only known how bad her heart was. She had a heart condition called Hypertrophic Cardiomyopathy. She was 38 years old. She left behind her husband Bob and her 3 young children Andrea, Robbie & Jerad. Some of us later found out that we also carry this gene including her twin sister, her mom, her other sister and one of my brothers. Thinking of my mom today and how much we all miss her. Thinking of all the families that have lost loved ones to HCM. ... See MoreSee Less

1 hour ago  ·  

CALLING ALL SOUTHERN CALIFORNIANS WITH HCM

Join us for an inaugural gathering of HCM patients and family members in the Los Angeles area. We will be meeting on Saturday, June 13 at 10:30 a.m. at a private home in La Canada Flintridge, located right off the 210 Freeway not far from Pasadena and Glendale.

If you are not available on June 13 but are interested in learning about upcoming HCM gatherings, please email Cynaburst@gmail.com and you will be added to the list and you will be notified of future events.

To RSVP for the June 13th event, email Cynaburst@gmail.com and you will receive an acknowledgment with the address of the meeting location.

Looking forward to seeing you there!
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1 week ago  ·  

Hi zipper buddies . It's winter in New Zealand and my ribs hurt alot. Can someone send me some extra sunshine ?? Thanks ♡♡ ... See MoreSee Less

2 weeks ago  ·  

HCMA Community

This post is as much about my using this board for a bit of therapy, than anything else. I'm a bit low today, mulling things over in my mind - and I...

Heading to Mayo Rochester July 21 for a one year post op check up. If anyone is going to be in the neighborhood .....PM me, maybe we can grab a cup...

Could someone recommend a site that gives the normal ranges for heart sizes and functions? Preferably by age. I have lots of info on the MRI report...

Now that my ICD is almost 9 year old, my cardiologists at Hopkins are telling me that one of the parameters (the time it takes to charge itself to...

Hi Everyone, I have searched the forums and done some googling but I don't understand LVOT and what it means. My results state: "there is an...

Image: http://images.tapatalk-cdn.com/15/05/18/2e1544ac6330ac8fdb64c16ccaf89c94.jpg This is Ethan my 14 y/o son. I know it isn't rational but the...

Hi there! I have a question. It is hard enough being a single mom of three, but then add in the additional challenge of telling someone you have...

Hello, I have been recently diagnosed with HCM Apical variant, during the screening process I completed an EKG stress test, two Echos one of those...

Would LVOTO cause me dizziness? Just got my stress report echo on-line. Report says ... 'The mechanism of LVOT obstruction has to do with an...

Haven't been posting for a while no sense In going over the same old same old, still on that slow downward slid and went through another right heart...

Join us for an inaugural gathering of HCM patients and family members in the Los Angeles area. We will be meeting on Saturday, June 13 at 10:30 a.m....

I know the fickleness of HCM applies not only to it's symptoms but also to it's progression. Over the years... It may or may not progress to a...

Hi, I am new to the forum and I am about to have a cardioversion for an irregular rhythm. Have any of you had this? I'm scared to death of what...

I received my ICD on 4/28/2015 and have some questions about exercise and getting back to my daily routine. I know I cannot move my left arm above my...

Ive had several ICD's and I am having mine changed next Tuesday...during my previous procedures, i was always sedated; however, i learned a couple...