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Does anyone have any knowledge about the backorder (again) on Norpace CR 150 mg? This is the second time this year! I know that last time this happened I saw a post on the HCMA page, but I haven't seen one this time. Any info would be greatly appreciated! Thank you! ... See MoreSee Less

2 days ago  ·  

HCMA Community question of the day: My diagnosis of HCM has Given me.....
Yes, this is an odd question of a diagnosis/disease. But here at the HCMA we hear amazing stories of empowerment, improved quality of life and lives saved. So today, think... what has YOUR diagnosis of HCM "given you"?
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3 days ago  ·  

Hi! New to this page and new to hypertrophy as a disease. Will be going for an echo tomorrow to gather a final report. Wanted to understand how troubling this is and is it fatal? I'm not particularly breathless but do feel the need to breathe deeply often coz of some stifled heaviness in the chest.. ... See MoreSee Less

3 days ago  ·  

Congratulations are in order! Our Facebook Community has reached a milestone - 8,005 Members - we broke the 8,000 mark! Welcome one and all and thank you for sharing and following the HCMA! Stay tuned in coming weeks for exciting news from the HCMA - Together we will fight to control and eradicate HCM! ... See MoreSee Less

4 days ago  ·  

HCMA Community Question of the day: We know HCM has taken many things from many people. Please tell us what HCM has taken from YOU. We appreciate this is potentially an emotional question and we thank you in advance for your honesty and candor. It is only though sharing the reality of HCM that we hope to raise awareness and global understanding of HCM.. so tell us... What has HCM taken from YOU? ... See MoreSee Less

4 days ago  ·  

Hello I am 5 days post surgery myectomy. Feeling pretty good can only hope to feel better with each day. ... See MoreSee Less

5 days ago  ·  

I continue to have chest pain after my myectormy. Every time i go to hospital except for twice my cardiac enzymes have been negative. I am a retired nurse. I have a pacemaker that was implanted before surgery because my heart rate dropped below 30. The doctor has not took me serious about the ICD. It feels like my heart is in a spasm, I get scared and try to wait it out but when I start having jaw pain and arm pain with a stabbing in my chest...I go to the ER. The doctors treat me as though I am a drug seeker. I do not know why they do not believe me. I feel humiliated. They most of the time do not start an IV. Last time I went to Columbus Regional Center. The doctor said you have had the surgery you are fine now and gave me 2 Tylenol . It seems very embarrassing to me .Has anyone else had this problem? Oh and once I was told the same thing left and went to see my doctor the next day and I was in Congestive Heart Failure. Why if they give me 2-4mg of morphine the spasms like go away. I feel fine. When I had my first heart attack it took 3 sets of enzymes to show positive. They run one and make you wait before they start cardiac protocol . ... See MoreSee Less

7 days ago  ·  

Happy Saturday HCM Community. Take a moment to invite your friends and family to LIKE the HCMA Facebook page. One simple SHARE can spread awareness and maybe encourage someone you know and love to get screened and seek medical attention! SHARE THIS to save a life! ... See MoreSee Less

7 days ago  ·  

Please do not send Private Messages to the HCMA Facebook page, instead please call the HCMA directly at 973-983-7429 or email support@4hcm.org ... See MoreSee Less

1 week ago  ·  

HCMA Community

Any of you have a cure for nightime leg cramps? I am so frustrated. I've tried Calcium/ magnsium supplements, stretching, evening walks, drinking...

I am headed to Mayo for testing on Aug 3rd and on the 4th I am having a Surgical Maze and an atrial appendage amputation. It will be performed by Dr...

My ICD that was going to last 7-8 years apparently won't make it to age 5. The tech says it has 6-9months left. Since I will soon replacing it, was...

Hi All, Had my myectomy on April 15, and doing well. One of my complaints is the heaviness of my legs. Right out of surgery I felt like I could...

I've had HCM for a long time but only recently developed a gradient within the last few years and my overall quality of life has been going downhill....

Hi everyone. I'm Tanja, and I'm posting with my husband Omar's permission. We've read through other's posts the past few months, and would like to...

I am looking for anyone who has had a Septal Reduction Myectomy surgery and any success / problems / etc. I have been told by various HCM experts...

I was fascinated by a story of a Dr. Wahls, who was diagnosed with MS and reversed her symptoms with a modified Paleo diet. She went from being in a...

I am leaving this Sunday for the Mayo Clinic and a meeting on Monday with Dr. Ommen and a scheduled Myecotmy on Wednesday with Dr. Dearani. After...

I just noticed that my bluetooth headset has a magnet in it. I'm guessing it isn't strong enough to cause a problem with my device.... right???

I have HCM and have an ICD and had a myectomy (Jan '14 at Mayo). In other words, like so many of us, I've been around the block. That said,...

Hi All, Well, it's official... as my wife has told me for many years, I am special - and now, I am unfortunately one of the few HCM club members...

To all my American friends and supporters have a great day. I am a starter on a golf course in canada and made sure every American got a little...

I'm heading to see Dr. Dearani at Mayo Clinic for 2 days of testing and meetings and then Septal Myectomy on Wednesday, July 8. I was diagnosed with...