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6 days ago  ·  

How bad do your numbers get before there is nothing that can be done for you? ... See MoreSee Less

1 week ago  ·  

Does any of your kiddos complain from leg pain ? Mine is 11 Years old with HCM and complains about legs pain almost every day. Sometimes in her knees , foot , or muscles ....Her pediatric says it could be growing pain? It has been going on for several month now and I'm wondering if it has anything to do with HCM? Thanks you all . ... See MoreSee Less

2 weeks ago  ·  

CALL MET AND CLOSED:
Thank you to those who called in.. all in under an HOUR.
You are an amazing community. thank you. This need is now filled but for the purpose of transparency we are leaving the post so you all can see whats going on.
Again thank you all!
CLOSED REQUEST as of 3:07pm EDT August 12, 2015
A major pharmaceutical company is seeking to speak to 10 patients with HCM, their market research firm will be conducting interviews. This will be a telephone interview to be conducted in the next week. You must speak English, have symptoms related to HCM and be willing to have your interview recorded over the phone. If you are interested please call the HCMA office at 973-983-7429 and leave your name number and that you are interested in the survey opportunity. Participants will be paid $125.00 for their time and the HCMA will receive $100 per completed survey. Please note that your number will be shared with the market research company for the soul purpose of participation in this survey. PLEASE CALL ASAP we suspect there will be significant interest therefore this will be a first come opportunity.
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3 weeks ago  ·  

Community Cardiologists are an important part of over all HCM care, but an HCM specialist will ensure your care in up to date with the current understanding and methods to manage this complex disease. If you or a loved one has HCM, please seek a consult from an HCM specialist - don't waist time wondering "can I feel better" or "am I at risk of cardiac arrest"... FIND OUT! ... See MoreSee Less

4 weeks ago  ·  

Share if someone you love has/had HCM! ... See MoreSee Less

4 weeks ago  ·  

HCMA Community

spent the night in er with my daughter. my brother who's in burn out collapsed and was admitted to hospital. my niece has a 6 yr old daughter was...

I'm scheduled for a hospital stay next week to start on Tikosyn for afib. If we don't have a hurricane on Monday, that is . . . Gordon

Hello, It's been some time since my last post. Presently I'm in Columbia NYC starting on Norpace. I've been here since Monday. Even though the...

A co-worker who knows I have a heart condition was out yesterday. I had heard her cat was sick and I inquired with her when she returned today. She...

Here's a thoughtful blog post from an electrophysiologist about patient-doctor decision-making: http://www.medscape.com/viewarticle/849689

Can someone please explain what an extended myectomy is compared to a "normal" myectomy? I see the term extended myectomy as I read through some...

Has any one noticed any change in your mental state or attitude after having a myectomy I feel great and can do things that i have not done in...

Hi, In terms of charge, when you do an ECHO HEART Test is considered Routine or Preventive test?, taking into account that you are a patient of...

Hi I had a myectomy April 15 2015 and while I feel so much better than before I can't seem to wrap my head around the fact that I have to lose...

Hello, My cardiologist is retiring at end of year. Although he wasn't the best with hcm, I was comfortable with him. Plus he emailed Dr Maron at...

I am having a myectomy at Mayo on August 21st but the center is out of network for my insurance. My husband and I agree we are ok with paying costs...

I have hcm since i was 14 now im 19. And ive been really in a bad place so i engage myself from smoking drinking and other stuffs that i know is not...

I don't always use mine - maybe 10% of the time - Usually on my bad HCM days or if my knee is acting up and then I only use the farthest one. But...

I was diagnosed one year ago this month with Apical HCM. I am barely symptomatic and the doctor at Mayo feels that I am not going to get any worse...

I was diagnosed with HCM in 2000, Dr. Schaff at the Mayo Clinic performed a myectomy in 2008. My current HCM doctor is David Owens at the Univ. of...