Research Spot Light!

Spotlight on ....

HCMA on YouTube

Events


Facebook Group Posts

Have you lost a loved one to HCM and an autopsy helped to determine cause of death? If you are interested in sharing your story with a major media outlet please send a message here or call the HCMA at 973-983-7429 ... See MoreSee Less

1 day ago  ·  

Attention NorpaceCR users... If you could deliver a message to Pfizer about the NorpaceCR shortage... what would it be? This is your chance to have your thoughts known by the thought leaders at Pfizer - please speak your mind and let us know the following - 1. how has this shortage impacted YOU 2. How do you think the shortage should have been handled. 3. What you would like to see in the future. Thank you for what we are sure will be thoughtful and meaningful input. ... See MoreSee Less

1 day ago  ·  

Any advice cardiac ablation for afib with hcm? Nervous about the procedure that likely will be happening. ... See MoreSee Less

4 days ago  ·  

We have taken some time this week to tell you about this new trial. To Learn more about this study visit this link clinicaltrials.gov/ct2/show/NCT02291237?term=HCM&rank=4
While not every trial is right for every patient... every patient interested in more treatment options should take the time to investigate trials that may help them... their families... and the entire HCM Community. Take a moment to see if YOU can help answer some very important questions! Thanks!
... See MoreSee Less

6 days ago  ·  

I'm almost 2 years post myectomy & ICD but chest pains upon exertion have returned. My cardiologist says not to be concerned since a heart cath showed my arteries are clear and the ICD will protect me. My question is at what point should I be concerned? If the chest pain doesn't subside when I rest? Would I have other symptoms if I was having a heart attack? ... See MoreSee Less

7 days ago  ·  

Is anyone aware of a cardiologist in Northern California with specific expertise in HCM? ... See MoreSee Less

1 week ago  ·  

This Community is approaching a milestone! We are a few "Likes" away from 8,000! Share this and ask your friends and family to LIKE the HCMA and help us raise awareness about HCM! Thanks! ... See MoreSee Less

1 week ago  ·  

HCMA Community

I see many references to a "Centers for Excellence" listing but where is that list? I see a list at the HCMA web site but it is not titled "Centers...

I've notice that many are posting a lot of identifiable info online here and as a reminder - we can't control who is viewing this. In the last 5...

I'm not sure which section to put this in. I guess here since it sort of relates to trips to HCM centers. I wanted to use TheStatus.com (as...

I read in a recent echo report that my left atrium was severely enlarged. I was diagnosed in 2005, myectomy & maze in 2007, several bouts with v-tach...

As a patient with HCM I want to be supportive. I don't find myself happy that I choose to identify this issue, sorry for my mistake.

I'll be at Cleveland Clinic next week for more testing and myectomy. I just received a phone call from someone at CC that asked if I'd be willing to...

Was really happy to see my HCM physician Dr. Srihari S. Naidu and Winthrop University Hospital in Mineola, NY back as a Center of Excellence....

I am headed to Mayo on April 27th. This will be an annual visit with Dr Ommen. Dennis

My wife and I will be heading to Minneapolis for a day full of appointments this Friday Feb. 27th (EKG, Echo, Stress Echo, & Cardiac MRI) followed by...

Hi Folks, It seems like it's been ages since I've posted anything here and when I've visited It's been hard to respond to many threads here on the...

I'm looking forward to feeling better after my surgery on March 5 at Cleveland Clinic. Another forum member contacted me that's also having surgery...

Routine ICD Eval? - Insurance Recently I visited a hospital in PA to get an uation. They checked my ICD. A month later I received a bill for...

This doesn't relate directly to an HCM related issue, but given my bet that most of us have other things going on that require prescriptions for...

I read in a recent echo report that my left atrium was severely enlarged. I was diagnosed in 2005, myectomy & maze in 2007, several bouts with v-tach...

Hello , can this be caused by injury or anything other than heredity ? Thanks - Tom