HCMA Educational Sessions - COVID-19

3/24/20 GoLive with Dr. Eric Adler from UCSD And Lisa Salberg
HCM and COVID-19
Topic: HCM and COVID-19; transplant concerns pre and post; other cardiomyopathies

Dr. Eric Adler – What is the Corona Virus, and how does it affect us?

HASHTAG

TIME MENTIONED

#bestantibac

05:45

#transplantcommunity

06:04

#HCMandCOVID19

06:59

#obstruction

07:12

#hypertension

09:26

#Ace2receptor

10:10

#qtintervals

11:44

# hydroxychloroquinetrial

13:51

# plaquenilcardiomyopathy

15:38

#telehealth

20:47

#drrecommendations

25:13

#COVIDandtransplantpatients

27:48

#currentguidelines

34:05

#ibuprofenvsacetaminophen

39:30

#donations

42:25




 

3/24/2020 GoLive with Dr. Naidu And Lisa Salberg
HCM and COVID-19

Topic: HCM patients and families: How to stay active and healthy while practicing social distancing, followed by general Q&A

Dr Hari Naidu: Staying in Shape while Social Distancing

HASHTAG

TIME MENTIONED

#bewareHCMpatients

01:45

#stayingfit

05:00

#maintaingaroutine

05:05

#dailyweightcheck

07:00

#sleeppatterns

08:55

#stress

12:06

#weightgain

12:47

#saltintake

14:23

#HCMAcookingchallenge

15:40

#waterintake

17:38

#socialdistancing

20:10

#mostatriskforCOVID19

22:35

#ACinhibitors

29:20

#mentalhealth

32:57

#masterclass

41:25

#audibles

42:00

#connectwithotherpatients

44:00






3/26/2020 
GoLive with Dr. Olivotto And Lisa Salberg
HCM and COVID-19

A conversation with Dr. Iacopo Olivotto, Associate Professor Careggi University Hospital (AOUC), Florence (Italy).

Dr. Iacopo Olivotto – Current Conditions in Italy and How have the HCM Patients been Affected?

HASHTAG

TIME MENTIONED

#electiveprocedures

04:11

#covidwards

04:40

#ethicscommittedclub

05:26

#HCMCOVID19patients

06:45

#myocarditis

12:25

#ibuprofenvsacetaminophen

19:07

#HCMtrialsinItaly

20:10

#virtualPFDDmeeting

24:45

#knowthedifference

27:04



3/26/20 GoLive with Mark V. Sherrid, MD, NYU, NYC and Lisa Salberg
Specialties: Hypertrophic Cardiomyopathy, Cardiology

Todays topic: Managing Speed Bumps with HCM

Dr Mark Sherrid – Life’s Speedbumps While Having HCM            

HASHTAG

TIME MENTIONED

#stayhome

01:00

#NYCcurrentconditions

01:57

#telemedicine

04:43

#newhearttechnology

06:51

#howtomanagelifeevents

07:39, 16:45

#HCMAmemberannouncement

10:44

#nonheartrelatedsurgery

13:20

#brokenheartsyndrome

19:58

#reproductivetechnology

26:22

#PGDHCMsuccessstories

30:30

#medicalillnesspreparation

33:12

#preventingASHCRASH

34:30




3/26/2020
A conversation with Dr. Martin Maron Medical Director Hypertrophic Cardiomyopathy Center and Research Institute Tufts and Morristown

Today's topic: Lets talk all things HCM

HASHTAG

TIME MENTIONED

#HCMandCOVID19

1:14, 48:15

#TeleMedicine

1:55

#ScarTissueRiskFactors

6:00

#LateGadoliniumEnhancement

6:00

#EchovsMRI

15:00

#ScarringPredictions

16:43

#SeptalMyectomyScarring

20:21

#ApicalAneurismVisual

21:38

#DeviceRiskWithMRI

23:35

#ConfusingIssues

26:10:00

#ExcerciseAndHCM

33:15:00




4/1/20 GoLive with Dr. Lubna Choudhury from Northwestern Memorial And Lisa Salberg
Associate Professor of Medicine (Cardiology), Fienberg School of Medicine, Northwestern, Chicago, IL.

HCM and COVID-19
Topic: Telemedicine / Virtual Doctors Appointments - What are we learning during COVID-19 and what can we expect for the future?

HASHTAG

TIME MENTIONED

#TeleHealth

1:15

#HCMCOVID19Patients

5:25

#COVID19Symptoms

7:05, 20:35, 34:25

#EssentialEmployeePrecautions

8:20

#Vaccinations

14:50

#TeleMedicine

16:25, 28:45, 42:15

#IbuprofenVsAcetaminophen

24:05

#TheoreticTreatments

24:10

#QualityEchoReports

31:45

#Prescriptions

37:20



4/3/2020
A discussion with Dr. Harry Lever, Cleveland Clinic, Cleveland Ohio

HCMA and Dr. Lever - 23 years of HCM and helping patients live their best lives. This session will include your questions, please remember this individual factors may vary between patients and you should seek input from your care team before making any changes to your life.

HASHTAG

TIME MENTIONED

#GenericDrugs

1:55

#HatchWaxmanAct

3:15

#OrdinaryGeneric

3:45

#AuthorizedGeneric

3:50

#FactoryProblems

7:25

#Consequences

12:00

#Carcinogen Contamination

15:10

#CheckYourPrescriptions

19:45

#DontChangeManufacturers

31:15

#WhistleBlower

37:00



4/7/2020
Caring for Pediatric and Young Adult HCM in the COVID-19 Pandemic

A conversation with John Lynn Jefferies, MD, MPH, FACC, FAHA, FHFSA, FAAP

HASHTAG

TIME MENTIONED

#COVID19

1:43

#IncreasedRiskGroups

3:40

#COVID19Statement

8:00

#COVID19Precautions

10:00

#VitaminsandSupplements

15:00

#HowToTreatSymptoms

18:25

#RAAS Inhibitors

20:40

#RemoteMonitoring

22:00

#DoctorRecommendations

28:00




 
4/9/2020

HCM and Clinical trials - Understanding the process. Including Dr. Anjali Owens, University of Pennsylvania on the Safety and Efficacy of Mavacamten in Symptomatic Non-Obstructive Hypertrophic Cardiomyopathy: The MAVERICK-HCM Study

COVID 19 questions at the end of the broadcast approx @ 40 minutes

HASHTAG

TIME MENTIONED

#ClinicalTrialsInHCM

2:40

#ObstructiveHCM

8:10

#NonObstructiveHCM

9:10

#Mavacamten

10:45

#Dosage

18:30

#BaselineEchoParameters

22:45

#SafetyData

23:35

#RealResults

27:00

#ExploratoryResults

29:25


4/28/2020

A Conversation with Steve Ommen, the Medical Director of the Mayo Hypertrophic Cardiomyopathy Clinic.

Topics include: HCM and COVID, Telemedicine and general HCM discussion.


 
5/18/2020

A Conversation with: Mark S. Link, M.D., Professor of Medicine and the Director of Cardiac Electrophysiology in the UT Southwestern Department of Internal Medicine’s Division of Cardiology and Co-director of the HCM Program.

Topics: HCM and COVID-19 heading back out - safely and A-Fib in HCM why is high volume care important?


7/29/2020

HCM, Covid and back to school?

Covid, HCM and back to school a conversation with HCM thought leaders