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Serving the HCM Spectrum Disorder Community Since 1996

Share your Story: Rob Besecker

“When we get knocked down in life we have two choices we can either get back up and keep going or stay down and feel sorry for ourselves.” said Rob Besecker, author of Everest Strong . Rob suffers from Noonan's syndrome, muscular dystrophy, and Hypertrophic Cardiomyopathy (HCM) but he has not let this stop him from traveling, and reaching his goals. Rob is an avid traveler who has gone to every continent, despite the complications from his heart problems. In 2000, Rob was diagnosed with atrial fibrillation, followed by an HCM Diagnosis in 2003, and a muscular dystrophy diagnosis in 2006. In 2011, Rob suffered from multiple shocks from his ICD and had 5 surgeries over the span of the year. Many people doubted Rob’s survival, and recovery. Thankfully, they were proved wrong when he recovered fully. As a way to demonstrate his recovery, Rob decided to hike to the Everest base camp. Rob acknowledged that he may not always be able to function at this level and he may have to compromise. He accepts these potentials because his heart should not stop him from achieving his goals but just limit him to more obtainable ones.
Rob is one of many living with an HCM spectrum disorder. The HCMA has recently worked to expand its reach to include HCM spectrum disorders like Noonan’s syndrome and look forward to working with more amazing people like Rob Besecker.