LIVE-HCM - A study of activity in those with HCM (Closed)

Closed for enrollment; currently in Follow Up Phase

The goal of the Lifestyle and Exercise in Hypertrophic Cardiomyopathy (LIVE-HCM) is to determine how lifestyle and exercise impact the well-being of individuals with HCM. 

Have you ever wondered  “how much exercise if good for HCM and how much is too much?”  Have you ever wished for a clear answer? We have, and so have many researchers. Here at the HCMA we know all too well that managing the balance of how much exercise is appropriate is complicated and confusing. We are happy to announce that we are partnering with researchers to find a more scientifically sound way to address this complex issue.

Who can participate?
Individuals with HCM or (“HOCM”), or a gene for HCM
8 to 60 years old
Any level of activity
With or without an ICD (defibrillator)
Ok to participate in other studies at the same time

What the study involves:
Interviews and questionnaires by phone and/or over the internet – No geographic limitations to participate
Wearing a Fitbit pedometer a few weeks per year – yours to keep

For more information please contact:

Central Coordinating Center
Yale School of Medicine
866-207-9813 or email them at

Download and print out the brochure and share with your family members: LIVE-HCM Study TriFold final