Board Members

Board Members:

Susan Blakey

Susan Blakey is a new board member and comes to us with 16 years of IT experience designing and maintaining systems predominantly in the supply-chain management and the financial industries.  Her organizational skills, attention to detail, and her ability to solve “what if” scenarios before they happen are skills that have helped her and her team be successful in implementing large-scale systems in complex, dynamic environments.  Susan has board experience where she was responsible for standardizing corporate policies and upgrading key financial systems.  Susan became active with HCMA in 2008 after the death of her husband from HCM.  She now lives on Mercer Island, WA  She has three children and a Bernese Mountain Dog.

Billur Dowse

Amit Kalia, MD

Amit Kalia, MD has been a member of the Board of Directors since January 2006. He is proud to take on a bigger role to help the HCMA continue its mission to support patients and their families affected by hypertrophic cardiomyopathy as the President of the Board of Directors.

Dr. Kalia’s family has been profoundly affected by HCM. When he was 9 years old, his family lost his father. Now, as a father of three, he is hoping to change the effect hypertrophic cardiomyopathy has on families today and in the future.

In 2004, he chose to leave a promising engineering career to pursue medicine. He decided to combine his technical background and desire to make a difference by specializing in minimally-invasive image-guided procedures as an Interventional Radiologist. Dr. Kalia is a former Cleveland Clinic physician now helping to build the Interventional Radiology service at the Miami VA Hospital, with a focus on Interventional Oncology, to serve our veterans.

Robert Lorfink

Martin Maron, MD

Richard Melia 
Richard P. Melia (Dick) has worked on disability and rehabilitation research, training, and policy for over 50 years. He completed his Federal career as Director, Division of Research Sciences, National Institute on Disability and Rehabilitation Research.  Dick’s PhD work at UMass Amherst uniquely combined expertise in public administration and public health. His father died of sudden cardiac arrest at age 63,  and Dick experienced a life-threatening cardiac event at age 59 that led to a diagnosis of HCM. One of his sons had heart surgery at age 40. Dick lives in Arlington Virginia. He enjoys representing HCMA in the Washington DC area where his Federal experience helps him in his advocacy work. 


Lynn Perry

Adam Salberg

Lisa Salberg


Lisa Salberg, Founder and CEO of the HCMA, began on the journey to educate, advocate, and support other patients based on her personal experience with HCM.  This included medical errors that nearly cost her life, the death of her sister - also due to medical errors- and the diagnosis of several family members. 

Lisa has published 3 books on HCM (available on this site), several peer reviewed journal articles, spoken internationally on HCM, and has appeared in TV and print interviews advocating for patients rights, research, and raising awareness of HCM.  

Emily Gerson Saines

Stephen Winters, MD