2011 HCM Treatment Guidelines issued by AHA/ACCF
As part of the mission of the HCMA we are in close communication with thought leaders and scientists dedicated to undertanding HCM. At a conference several years ago we asked leaders at AHA to include HCM in the "get with the guidelines" program. This was a huge task requiring input from many sources and took many years to complete but it is finally here. This document contains the latest in the management of HCM, including items from genetics to transplant and all point between. The HCMA is happy to have been a party to the creation of this document. Our sincere thanks to Dr. Robert Bonow and Dr. Rick Nishimura for getting the ball rolling all those years ago in the hall ways of scientific session! Additionally thank you to all members of the writing team - most especially the co-chairs Dr. Barry Maron and Dr. Bernard Gersh for taking on this not always easy task. ... Full story
What is Hypertrophic Cardiomyopathy (HCM)?
To better understand what Hypertrophic Cardiomyopathy, HCM, is lets first talk about how cardiomyopathies are described. Cardiomyopathy is a condition in which the muscle of the... Full story
About the HCMA
The Hypertrophic Cardiomyopathy Association is a not for profit 501(c) (3) organization formed in 1996 to provide information, support and advocacy to patients, their families and medical providers. ... Full story
HCMA from ACC 2013
Live from the floor of ACC... Lisa Salberg offers updates on HCM
Latest additions
How can you help save a life in your own community?
If your visiting the HCMA website, you likely already know that AED's Automated External Defibrillators are an important tool in saving lives. We see them in many places in our communities which is wonderful. The sad reality is many people have no idea just how easy it is to use an AED! Learn more about the HCMA's ABC's of an AED poster and how to order enough to post them around your community to help ensure that in a time of need the AED is USED and a life is SAVED!... Full story
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Contact Us!
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322 Green Pond Rd.
PO Box 306 Hibernia NJ 07842 |
973-983-7429 (Office)
973-983-7870 (FAX) support@4hcm.org |
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Resources
HCMA - Community Resource Materials
The items below will assist you in educating your community about risk factors for HCM and other conditions that cause sudden cardiac arrest and how to repond to events should they occur. ... Full story
HCMA Genetic Testing Assistance Application
The HCMA knows that it is important to know who in your family is a genetic carrier for HCM and the peace of mind that can come from being prepared. We are happy to launch this new program to help families access genetic testing. Please download the application from the attachment section located to your right. Should you have any questions please call the HCMA at 973-983-7429. ... Full story
Resources and important links
The HCMA knows that living with HCM means different things to different people and the needs of patients, families, medical professionals and interested members of the public at large may have a wide variety of associated interests. This area of the website ties together some of these associated needs.
- We're trying to find the right doctor and the right treatment.
- Carvedilol
- Has anyone here had VF episodes several months after a septal/apical myectomy?
- ICD saved my life again yesterday..
- ADD Medications and HCM
- Congratulations Lisa on NJ legislation!
- Chest pain or muscle pain?
- Post Septal Myectomy and Care
- Life alert scam
- Insuance and holter monitor
