Newly diagnosed? Start Here!
Being newly diagnosed is scary and can be very overwhelming. We at the HCMA encourage you to take your time and get educated before making any major choices regarding therapy or occupation. HCM is for the overwhelming majority a diagnosis that is compatable with a normal life span and high quality of life.
Lets start with some facts about HCM to help you get started:
1. HCM is a genetic condition - you did nothing "wrong" to get it, you were simply born with a genetic mutation that took in most cases years to appear or be diagnosed as HCM.
2. HCM is compatible with a long and healthy life and my have few symptoms or may have significant symptoms.
3. This site contains information on all aspects of HCM - you will likely NOT need all treatments noted here.
4. Most cardiologists see very little HCM in their daily practice therefore the HCMA has long advocated that those with HCM should be evaluated by HCM Centers (list located on this site). The new American College of Cardiology/American Heart Association Guidelines agree with this opinion.
5. In the past 10 years much progress has been made to identify those at high risk for sudden cardiac arrest with HCM, and we know that approximately 25% of HCM patients would benefit from ICD therapy - which is over 99.5% affective in responding to cardiac arrest.
6. New data indicates that those diagnosed for the first time over the age of 60 have no difference in life expectancy then the non HCM population and have a very low incidence of sudden cardiac arrest.
Now watch this video clip and learn more from Lisa Salberg, COE and Founder of the HCMA and patient since 1979
or download the clip to the right of your screen.
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