Is a Cure Available?
At present there is no cure for Hypertrophic Cardiomyopathy. In current days we are encouraged at the idea we may be able to eradicate, not cure HCM. While we remain very hopeful that new treatments will continue to improve our understanding and the management of HCM it is not likely that there will be an outright cure within the next 20 years.
With expanded knowledge about genetics and the knowledge of who is a gene carrier, therapies can be created to help those who are gene carriers NOT express the HCM gene. This is years away from reality but it is on the horizon as a possibility.
We have made significant advances in risk stratification for sudden death, learned that implantable defibrillators can save lives and made marked advancements in our understanding of the genetics behind HCM.
In the coming months and years we will learn more about the use of MRI in HCM, the role of genetic testing, how to screen more effectively. There are many exciting research efforts underway at many facilities around the world and with continued efforts on behalf of our wonderful HCM researcher we will have more information as to how we can improve our quality of life, minimize risks and live longer lives with HCM.
For those who have already expressed the gene and have HCM there are some exciting possibilities on the horizon.There is a slight possibility that some drugs may decrease the degree of muscle thickening. However, no treatment has been shown to return the heart to normal. Research continues in this area. Developments are most likely to come from the early detection of persons carrying the gene for Hypertrophic Cardiomyopathy and treating them to prevent the development of hypertrophy. The achievement of this goal will require much further research and is many years away from reality.
The HCMA is working with many programs around the world seeking and fighting for the “cure” or “eradication” of HCM. There are two ways you can help.
- Donate to the HCMA and mark your donation “research” ensuring your gift will be guided to research efforts.
- Contact the HCMA and participate in research. Call the office for more information 973-983-7429