Finding an HCM Specialist
Patients with HCM benefit from having a home town cardiologist and an HCM specialist. These specialists dedicate the majority, if not their entire, careers to the treatment, management and quest for knowledge of HCM. The list below will assist in guiding you to programs committed to evidence-based treatment of HCM using the "HCM program" / "Center of Excellence" concept.
Over the next few months the HCMA will be collecting the needed data to identify programs in accordance with our new terminology. While this process is underway programs will simply be listed without designation. We hope to have this process completed by September 1, 2011.
Just as HCM is a variable condition HCM Centers are also highly variable in services and experience level. Some programs have decades of experience, strong surgical programs, extensive publications in scientific literature, and teams of subspecialists specifically dedicated to HCM and extensive outreach programs. Other programs may be newer, referrer and out for surgery, referred to subspecialists who were not part of the HCM team, have limited scientific publications and limited community outreach.
Some programs are run by cardiologists who specialize in cardiac imaging and in the view of the HCMA and is the preferred subspecialty to have as the director of HCM program. This does not mean however that programs run by other subspecialties do not provide quality care or are not considered for HCMA recognition.
HCM programs performing high volumes of surgeries per year are preferred over programs performing infrequent surgeries. However, some programs refer to centers on a regular basis where high volumes surgeries are preformed and this is taking into consideration during the evaluation process.
Each program needs to be evaluated on its own merits and balanced against the needs of the individual patient or family.
The HCMA offers these designations as a guide to assist you in choosing the program that best fits your needs. The HCMA makes no guarantees about the services rendered within the center or the quality of care each individual will receive. Further the HCMA does not advocate for substituting the care of a local cardiologist for the care at a Center of Excellence, but rather that your local cardiologist work in cooperation with the Center of Excellence to ensure you are receiving the highest quality of care possible.
HCM Programs in the United Sates:
Minneapolis Heart Institute Foundation
Barry J. Maron, M.D. - Minneapolis, Minnesota For appointments call 612-863-3996
Steve Ommen, M.D. Rochester, Minnesota For appointments call 507-538-1434
Cleveland Clinic Foundation
Harry M. Lever, M.D - Cleveland, Ohio For appointments call 216-444-6970
Tufts Medical Center - Hypertrophic Cardiomyopathy Center
Martin Maron, M.D. Boston, Massachusetts For appointments call 617-636-8066
Brigham and Women's Hospital / Harvard Medical School
Carolyn Ho, M.D. Boston, Massachusetts For appointments call 617-732-7921
Genetics Research Program: The Seidman Lab at Brigham and Women's Hospital and Harvard Medical School - Christine Seidman, M.D.
St. Luke's-Roosevelt Hospital
Mark Sherrid, M.D New York, NY For appointments call 212-492-5550 x1200
The University of Texas Health Science Center at San Antonio
Marc Feldman, M.D. San Antonio, Texas For appointments call 210-257-1888
Northwestern Memorial Hospital's Bluhm Cardiovascular Institute
Robert Bonow, M.D Chicago, Illinois For appointments call 312-695-1052
University of Michigan Cardiovascular Center’s Hypertrophic Cardiomyopathy Clinic
Sharlene Day, M.D. Ann Arbor, Michigan For appointments call 734-936-4000
Washington University Hypertrophic Cardiomyopathy
Keith Mankowitz, M.D. Saint Louis, Missouri For appointments call 314-362-1291
The Hypertrophic Cardiomyopathy Center at Stanford
Euan Ashley, M.D. Stanford, California For appointments call 650-723-6459
University of Kansas Hospital
Loren Berenbom, M.D. Kansas City, Kansas For appointments call 913-588-9600
Johns Hopkins Heart Institute
Theodore Abraham, M.D. Baltimore, MD For appointments call 410-955-3996
Winthrop University Hospital-Hypertrophic Cardiomyopathy Center
Srihari Naidu, M.D. Mineola, New York For appointments call 516-663-9696
University of Washington
David Owens, M.D. Seattle, WA For appointments call
Emory Hospital/ Sibley Heart Center
B. Robinson Williams III, M.D. Atlanta, GA For appointments call
Central Florida Cadiology Group
Marcos Hazday M.D. Orlando, FL For appointments call (407)841-7151
The Centers are listed in random order. It is important to check with your insurance provider prior to making an appointment at a center. The HCMA does not endorse any particular program. To be listed as an HCM Center of Excellence or HCM Program there are basic criteria the center must present to the HCMA to be recognized by the HCMA . If you are with a medical program that would like to be evaluated for possible addition to this list please contact the HCMA at 973-983-7429 for more information.
Centers located outside the United States include:
Azienda Ospedaliera Universitara Careggi, Florence Italy
Referral Center for Cardiomyopathies
Please visit www.cardiomyopathy.org for a center near you