Norpace so far

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People,

First experiences on using Norpace a.k. disopyramide:

Dose: 2x100mg a day combined with 50mg Toprol XL

Effects: noticable less discomfort, easier with exercise, bending over, less reaction on food (full stomach), heart feels calmer, i assume the obstruction has less effect and the gradient will be somewhat lower. These are the effects i was looking for, maybe the dose should be upped a little in time.

Side effects: little dizzyness, dry mouth, at night a slight tendency to flutter as the Toprol XL wears off (maybe have to split the dose of Toprol XL to better cover during the night), bladder takes some thinking time whether its empty or not yet :P .

Overall result: worth trying, as it offers symptomatic relief and may postpone more invasive treatments.

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[vmcmahon]

Hi AD

Glad to hear that it is working for you!! . I for one could never have considered Surgrey untill I had tried every other possible solution

vinnie

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Let's 'bump' this tread up again :P

Well, 3 weeks now, and still noticible good results from the Norpace. One remarkable thing: i lost nearly 4 pounds of weight, and all around my belly Now that looks great, but it probably wasn't fat, i really think i was retaining fluid there... and the better circulation afforded by the Norpace enabled my body to get rid of it. Oh, no doc ever looked at my stomach for signs of CHF

In 3 weeks, no bouts of AF, that's already something of a record (last year, i had AF every 2 weeks or so). My heart is really calm. I have more energy, yesterday took the bike for a ride without problem. Seems there are some on the board having late effects following ablation. I'm glad i've bougth myself time to very carefully reconsider this (proposed) treatment!

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[Lisa Salberg]

It sounds like it is working for you! I hope it keeps doing the job!

Best wishes,
Lisa

[Pam Alexson]

Ad,

Sounds like a great report , keep doing well !

pam

[joyce1961]

my husabnd, 45, also takes large doses of atenol and norpace. both have helped the symptoms greatly. Glad they re working for you!
joyce

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Yeah, but the anti choleric effect is increasing my GERD symptoms so i'm spending on meds to counter the side effects of the meds i take to countereffect the side effects of other meds i take that i take to increase the effects of the meds i have to take other meds for to counter effect the HEY...! i'm running circles how's that ? Gotta talk to somebody now and quick, or buy Pfizer stock (and i didn't need the blue ones yet ).

Anyone else getting or increasing GERD symptoms? It isn't listed as side effect, so of all people i'm the 'proud' discoverer i guess...

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[cynthia]

glad it is working for you! I have been on dofetilide for almost 6 weeks and feel good --- hope it keeps that afib under control for both of us!!

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Cynthia,

New med for you? Hope you get/stay out of Afib. Dofetilide: what group of meds does it fit into?

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[Sarah]

Dofetilide is a potassium channel blocker, just like Norpace and Betapace (disopyramide and amiodarone, respectively).

I was on it for two years. It worked great but it can tend to taper off and stop working like it did with me. I was on Norpace for 10 years without that problem.

If you can manage it, you may want to see what you can do with yoru diet and medication tweaking to find a good Norpace balance.

good luck,

S