Re: Going for EP study
A better way to think about it is that there's a Center of Excellence for HCM at Northwestern. That doesn't necessarily mean that every doctor there is involved with it, or that every doctor there is as fully informed about HCM as they might be.
Many EPs like to do these studies. It's what they do, and it's what they do for many patients. They have a hard time believing that these studies aren't very informative in HCM patients. Several years ago, my HCM specialist had to have . . . um . . . "words" with my EP, who wanted to do one of these studies while he was in my heart doing something else that everyone agreed was a good idea. The EP told me that he knows that there are questions about it, but just can't believe that EP studies wouldn't be informative with me.
There is a long consensus statement on diagnosis and treatment of HCM, signed by representatives from all of the relevant heart professional societies, including electrophysiology, stating that EP studies have limited value for HCM patients. That doesn't mean that practicing EPs necessarily agree.
Myectomy on Feb. 5, 2007.