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View Full Version : Lets get this signed into LAW!



Lisa Salberg
01-25-2005, 07:16 PM
CONGRESS OF THE UNITED STATES
HOUSE OF REPRESENTATIVES
WASHINGTON, D.C. 20515


Fact Sheet: The Teague Act

Problem:

Ø Each month between 250 and 600 young people in the United States die suddenly and unexpectedly from cardiac arrhythmia syndromes.

Ø These syndromes include long Q-T syndrome, hypertrophic cardiomyopathy, arrhymogenic right ventricular dysplasia, and others.

Ø Long Q-T syndrome is more common in the United States than childhood leukemia.

Ø Most cardiac arrhythmia syndromes that cause sudden death in the young are identifiable through screenings.

Ø Once diagnosed, these syndromes are treatable, and individuals with these conditions can have normal life spans and life-styles.

Ø Currently infants and children are not automatically screened for any cardiac arrhythmia syndromes. In addition, young people are not often tested for cardiac syndromes before participating in sports.

Solution:

The Teague Ryan Sudden Child Cardiac Arrhythmia Syndromes Screening and Education Act of 2005 would provide grants through the Centers for Disease Control to States, political subdivisions of States, and other public or nonprofit private agencies to be used for education and screenings regarding cardiac arrhythmia syndromes. The grants would specifically be used to screen children for sudden cardiac arrhythmia syndromes, provide referrals for medical services and provide education to health professionals and the public about cardiac arrhythmia syndromes, including education on screening.

The language in the bill gives priority in making awards to screenings and referral programs for children who participate in, or intend to participate in, organized sports and to educational activities that are directed toward parents and health professionals.

The bill appropriates $20 million for fiscal year 2006, and such sums as may be necessary for each of the fiscal years 2007 through 2010.

MORE INFORMATION TO FOLLOW FROM THE HCMA!

Lisa Salberg
01-25-2005, 07:19 PM
BILL NUMBER PENDING - but call your congressman today and ask for his/her support.
.................................................. ...................
(Original Signature of Member)
109TH CONGRESS
1ST SESSION H. R. __
To amend the Public Health Service Act to provide for a program of
screenings and education regarding children with sudden cardiac arrhythmia
syndromes.
IN THE HOUSE OF REPRESENTATIVES
Mrs. MCCARTHY introduced the following bill; which was referred to the
Committee on ______________
A BILL
To amend the Public Health Service Act to provide for
a program of screenings and education regarding children
with sudden cardiac arrhythmia syndromes.
Be it enacted by the Senate and House of Representa- 1
tives of the United States of America in Congress assembled, 2
SECTION 1. SHORT TITLE. 3
This Act may be cited as the ‘‘Teague Ryan Sudden 4
Child Cardiac Arrhythmia Syndromes Screening and Edu- 5
cation Act of 2005’’. 6
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January 25, 2005 (4:07 PM)
____________
2
H.L.C.
SEC. 2. FINDINGS. 1
The Congress finds as follows: 2
(1) Each month between 250 and 600 young 3
people in the United States die suddenly and unex- 4
pectedly from cardiac arrhythmia syndromes. 5
(2) These syndromes include long Q-T syn- 6
drome, hypertrophic cardiomyopathy, arrhymogenic 7
right ventricular dysplasia, and others. 8
(3) Long Q-T syndrome is more common in the 9
United States than childhood leukemia. 10
(4) Most cardiac arrhythmia syndromes that 11
cause sudden death in the young are identifiable 12
through screenings. 13
(5) Once diagnosed, these syndromes are treat- 14
able, and individuals with these conditions can have 15
normal life spans and life-styles. 16
SEC. 2. SCREENINGS AND EDUCATION REGARDING CHIL- 17
DREN WITH SUDDEN CARDIAC ARRHYTHMIA 18
SYNDROMES. 19
Part B of title III of the Public Health Service Act 20
(42 U.S.C. 243 et seq.) is amended by inserting after sec- 21
tion 317S the following section: 22
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January 25, 2005 (4:07 PM)
____________
3
H.L.C.
‘‘SEC. 317T. SCREENINGS AND EDUCATION REGARDING 1
CHILDREN WITH SUDDEN CARDIAC AR- 2
RHYTHMIA SYNDROMES. 3
‘‘(a) IN GENERAL.—The Secretary, acting through 4
the Director of the Centers for Disease Control and Pre- 5
vention, may make awards of grants or contracts to 6
States, political subdivisions of States, and other public 7
or nonprofit private entities, such as the Cardiac Arrhyth- 8
mias Research and Education Foundation, the Sudden Ar- 9
rhythmia Death Syndromes Foundation, and the Hyper- 10
trophic Cardiomyopathy Association, for the purpose of 11
carrying out programs— 12
‘‘(1) to screen children for sudden cardiac ar- 13
rhythmia syndromes; 14
‘‘(2) to provide referrals for medical services re- 15
garding such syndromes; and 16
‘‘(3) to provide education on such syndromes to 17
health professionals and the general public, including 18
education on screening methods. 19
‘‘(b) PRIORITY IN MAKING AWARDS.—In making 20
awards under subsection (a), the Secretary shall give 21
priority— 22
‘‘(1) to screenings and referrals under such 23
subsection for children who participate in, or intend 24
to participate in, organized sports; and 25
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January 25, 2005 (4:07 PM)
____________
4
H.L.C.
‘‘(2) to educational activities under such sub- 1
section that are directed toward parents of children 2
described in paragraph (1) and health professionals 3
who commonly provide medical care for such chil- 4
dren. 5
‘‘(c) TECHNICAL ASSISTANCE.—The Secretary may 6
provide technical assistance to grantees under subsection 7
(a) with respect to the planning, development, and oper- 8
ation of programs under such subsection. The Secretary 9
may provide such technical assistance directly or through 10
grants or contracts. 11
‘‘(d) EVALUATIONS.—The Secretary, directly or 12
through grants or contracts, shall provide for evaluations 13
of programs under subsection (a) in order to determine 14
the quality and effectiveness of the programs. 15
‘‘(e) DEFINITION.—For purposes of this section, the 16
term ‘children’ means individuals under the age of 19. 17
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—For the 18
purpose of carrying out this section, there are authorized 19
to be appropriated $20,000,000 for fiscal year 2006, and 20
such sums as may be necessary for each of the fiscal years 21
2007 through 2010.’’. 22
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