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purple_ness1
10-04-2004, 01:20 AM
heya people

first of or THANKS lisa for making this "hang out" :D

well im margie im kind of cam and go form this board ever now and then
i was diagnosed with hcm at the age of 7 im now 16 ,alot of my family members have it my dad,aunty,cosions my gradmother and anuty both died for hcm
it didnt realy effect me when i was younger its just in the last 2-3 years its been effecting me and i hate it, iv gone form lik notihng 2 everythink i cant go a day in my life now without it doing somethink 2 fuk up my day

well its brought me so much pain and hate in my life and stoped me for doing so many things ,and i hate been told i cant do somethink so i go and do it then i end up blacking out or somethink dum lik that , i go thou it so many times in my head telling my self "yep its all good ,just get over it" but i always end up in the same place

its good 2 know im not that only my age with hcm

*margie*

Lisa Salberg
10-05-2004, 03:49 PM
Margie,

I am an adult now....but was 12 when diagnosed with HCM. I remember the way I felt about it - in short I was not very happy and did not like the doctors telling me how to live my life. Looking back at it now...20++ years later - I did not miss out on much - my life as a teenager was as "normal" as any other teens - just a little different. I do feel that I had to grow up a little faster than my friends - and that I understood at an early age that LIFE is not something to be taken for granted.

Feel free to share your thoughts - good - bad or otherwise - WE understand!!

Take care!
Lisa

ise2425
10-21-2004, 03:21 AM
hey margie, im 16 too my names steven and im goin through same kinda stuff as you, it sux to be limited , i know howu feel, feel free 2 vent

steve

ise2425
10-21-2004, 03:21 AM
hey margie, im 16 too my names steven and im goin through same kinda stuff as you, it sux to be limited , i know howu feel, feel free 2 vent

steve