Ruth Gordon
02-19-2003, 04:50 PM
:D I have known about my HOCM since 1987, but was not told of any treatment until 1996 when I was referred to Mayo Clinic. At that time Dr. Nishimura and his team suggested either a myectomy or a study program with Metronics and a pacemaker. I opted to go with the pacemaker which worked for about a year and then, as now, it is at it's limit as far as helping me. In January of 2002 my gradient had soared and by August was up to 146. At that time I was extremely uncomfortable and unable to walk more than 10 feet without stopping for a breath or two. My cardiologist and I decided it was time to do something. At this time I opted for the Alcohol Septal Ablation, due to my age (67) and stature. I also contacted and chose to go to Mayo Clinic, once again with Dr. Nishimura handling my case. I did have the ablation in October 2002 and one week later felt like I was given back my life. What a fantastic experience. and marvelous hospital. Now, February, I am walking on treadmill doing 1-1/4 miles, three/four times a week, taking less medication and still feeling great. The ablation only took away 3/4 of the muscle but that was enough. Hopefully the procedure will give me a longer and better life to look forward to. I hope to keep you informed and if I can give anyone helpful information they can contact me at my e-mail. Thank you for all of the support I have received from your organization, knowing so many people share my problem. I also have a twin sister with the same condition. Ruth Gordon