I have had the following procedure...

[Lisa Salberg]

Lets see who is here...poll time!
Choose one please.
Lisa

[Lisa Salberg]

Ok now... I KNOW you guys are here...please take the poll so others know your here too :D
Lisa

[Margie]

I've had a myectomy and ICD surgery.

[Howard Mirchin]

Lets see who is here...poll time!
Choose one please.
Lisa

Lisa:

I had a myectomy. Look forward to talking to you soon.

Howie

[Lisa Salberg]

Hey Howard,
How did you make out on your post preocedure follow up?
Lisa

[behrang]

Hi,

I have looked around the HCMA archives and internet for some info, with no luck. Can you help me to make decide for surgery

I am in late fifites and diagnosed with HCAM with obstruction - 8 months ago.

Toporol 50 and loosing some weights have reduced my dizzinesss to 0-5 per day - depnds what I have eat :P .

The septum ticknes is about 18 (1.8) and gradinat is close to 30 (while resting).

I have strongly suggested to have a myctomy, one reason is my age and getting older may make recovery more difficult.

I would appreciate if you can direct me to some medical papers or help me with your suggestion.

Thanks a lot,

Behrang.

[Linda]

Behrang, I see from another posting, that you are at the Mayo. You are at an excellent facility with vast experience in treating HCM. Ask questions about all options until you understand everything you want to know. They can provide papers or direct you to their medical library for the info. Also, email the HCMA office or call direct and Lisa can provide info for you. Let us know how things are going. Best wishes, Linda

[Lisa Salberg]

The choice to have a procedure is a complicated process... and one that should be carefully discussed with those in centers that provide care to HCM patients on a regular basis.
I would suggest seeking out a specialist, having a consultation and then looking at your options.
If you need us...just call.

Lisa

[keith]

Evaluating my options for upcoming procedure

[rayroachjr]

I have had Myectomy and valve repair Dec. 9-03 and doing grrrrreat.

[TammyC]

Alcohol Ablation - April 7th/2004

[mimoo55]

My husband had alcohol septal ablation - November 20, 2003. Doing well.

Paula

[atydev]

I have also had a mitral and aortic valve replacement and a myectomy.and the EP procedure for Wolfe Parkinson White

[Debora from Brazil]

I've had 3 mitral valve replacements due to rheumatic fever as a child, and will be having my fourth sometime in the future. Date of surgeries:

August14th, 1975 at the age of ten

April16th, 1980 at the age of 15

December19th, 1995 at the age of thirty

Débora from Brazil

[shirleymahoney]

Well everyone i had a Myectomy Febuary 23rd of 04 and i was doing good in the beginning but my right ventricle became stiff too along with the left ventricle and they said right after surgery i didn't have any regurgitation well now it is back and it would be mitral and tricuspid regurgitation and i'm now being evaluated for a transplant i guess i had to go on to be the 2 to 3% that go on to transplant

Shirley

[Joyce Leinart]

Septal Myectomy @CCF 12-12-05. I am doing very well!!

[Bettie]

I had the septal myectomy at the Cleveland Clinic.
Bettie

[CardioClay]

I had a Myectomy when I was 10, four years ago.

[amludo]

I see your from Maryland. My sister spoke with Dr. Lever and has a 3 day testing dates,Oct 11,12, and 13 and surgery date, Oct 24, after sending her local(Scranton,Pa) test results CD-ROM. But her insurance company has denied coverage for Cleveland. They are offering a place in Maryland or Thomas Jefferson in Phili. After the research we did, Cleveland is where she NEEDS to go. Any suggestions with help on the insurance front?

[Pam Alexson]

Others will pipe up here, BUT fight them on every level available and do not take NO for an answer. Threaten to call your representative or any other method that works. When I had standard / non medicare insurance and myself or one of my children were denied something , I hounded them and told them NO was not in my vocabulary and THEY would have to make it work and approved because anything less was unacceptable . I must be scarey because the doors always opened when I was firm and persisted.

[packy04901]

i had a myectomy june 30th at the mayo. at first everything was fine and i thought i was "cured", but lately i have been loosing the feeling in both of my hands and it feels like i'm getting what would best be describes as a "cramp" coming from the left side of my chest, i have an appt with the doc tomorrow. has anyone ever had those post myectomy pains too?

[premiertraveller]

Troy had a myectomy and a modified MAZE procedure at Mayo.

[rilda moore]

Lets see who is here...poll time!
Choose one please.
Lisa I have had a myectomy an mitral valve replacement. I also have a pacemaker. Rilda Moore

[RRKamm]

I have had a mitral valve repair, 2 alcohol septal ablations, and an ICD implanted.

[rgong]

I have had:
1) septal myectomy
2) mitral valve repair
Both on 4-24-2007

Rich G

[Seabee Vet]

I had a Myectomy in January at the VA Hospital in Minneapolis. I was recently informed my Primary AND Cardiac Doctors did not believe I had a problem.:mad: Heart problems are not service connected so I had nothing to gain be "faking" it, I'm glad a 3rd doctor decided to help me. A Specialist from the University of Minnesota did the surgery.

I now have a pacemaker because my heart kept slowing to 20 beats a minute. My wife thinks I can go back to work (at least part time) and I should try out for the Ironman triathelon. :p I'm 62 years old and on SSDI.

[Norman]

Hi Lisa:

I had my myectomy on May 16 this year at Toronto General Hospital. So far so good. Still having some lung issues but the breathing device is working well and my wife makes sure that I continue to use it. Currently, they have me on two BB Metoprolol (half tablet twice daily) and Amiodarone (one tablet twice daily for two weeks then one tablet daily for two weeks) after this I'm to be evaluated. I had my echo before I left TGH and my gradient was 10 at rest before the surgery it was 60. Just thought I should share this with you and thank you for your support.

Norman

Ps

I just wished I lived on flat ground ........

[Bruce42]

Septal Ablation Feb. 2006. Some relief over next 6 months, but gradient returned by Feb. 2007. Had myectomy at Cleveland Clinic 4/12/2007. Doing great 8 weeks later.

[Neenee]

I had my myectomy & mitral valve repair on Feb. 20, 2007 and three days later a dual pacemaker/ICD unit was implanted.

My doctor told me ( after I asked ) that the thickness would not grow back.:confused: Why are some being told it 'might'......and others that it 'wont'.

[dkell88]

Hey Everyone;

I am a new member and I just found out about a week ago that I need to have surgery. I am just wondering what is the best option in peoples thoughts. I am a little worried about the septal ablation heard too many horrible stories on that one. I am just a little scared as to what to do. My cadrio Dr. has not told me much (ok nothing at all).

I just wanted to hear from people that have gone through it or are about to and what made them go with the surgery they did. Any options would help to relax me.

Thanks

[Cynaburst]

You should go back and read all of the old posts on this section of the board. I think you will find all of the info. that you are looking for. Just make sure you select from the beginning of time in the dropdown, and start there, and work your way up to the present.

[Seabee Vet]

dkell88: I know it is hard to read ALL of the previous posts, I have had to do it myself on ocassion, contact your Cardio Doctor and ask him (her) what to recommend. My understanding is septal ablation is only done in Texas and is VERY painful.

I had my myectomy & mitral valve repair on Feb. 20, 2007 and three days later a dual pacemaker/ICD unit was implanted.

My doctor told me ( after I asked ) that the thickness would not grow back.:confused: Why are some being told it 'might'......and others that it 'wont'.

NeeNee:

I just saw your post and don't know if you havefound an answer, but...I was told the same thing and asked the same question.

Growing back occurs in younger people who are still growing, regrowth in older people is VERY RARE, because your body (and heart) are no longer growing.

[ghese]

dkell88: I know it is hard to read ALL of the previous posts, I have had to do it myself on ocassion, contact your Cardio Doctor and ask him (her) what to recommend. My understanding is septal ablation is only done in Texas and is VERY painful.



Growing back occurs in younger people who are still growing, regrowth in older people is VERY RARE, because your body (and heart) are no longer growing.[/FONT][/COLOR]


hi to all -- my name is reena and i've been lurking for quite a while now but thought i would offer my own experience with the ablation. my brother and i were diagnosed with hocm in '98 and had the septal ablation in August '98 and March '99 at methodist hospital in houston. I was 26 and he 22 at the time. just before the ablation I was having severe sob and difficulty walking and after a quick recovery all changed.

i have to say we were and to some extent still are ignorant about hcm and so when I was told there was nothing else to worry about i thought i (we) were cured. i even stopped seeing the cardiologist because i thought i was fine and in most respects i've gone on to live a productive life but this easter while having dinner i passed out. i realize now i've had one other syncope before this but i didn't say go to the hospital and just thought it was due to a cold.

about 5yrs ago my uncle died of sudden death and once the doctor's found that out along with my multiple syncopes it was decided the best coarse of action was the icd. i was able to speak to lisa and she helped me decide that it was the right thing to do for me.


my brother seems to be fine and has not had any problems since his ablation but due to my uncle's death and my syncopes his doctor said at some point he probably would need an icd and he opted to get it sooner rather than later. so a week after my surgery my brother was implanted at the hcm specialty center in san antonio.

since then my symptoms have worsened and i am now on 200mg of toprol and they have decided to start pacing me. i live in nyc am under the care of dr. sherrid and now have been diagnosed with apical septal hypertrophy.

i do wonder what if ... what if i didn't have the ablation and what if we looked at other methods before jumping into this but because we were terrified of the myectomy, the ablation sounded like the only good option.

i can tell you that the ablation itself wasn't bad or terribly painful. my brother was I beleive #32 in Dr. Spencer's study and he did say it was painful and uncomfortable, but I was #96 and they, I gather, got better at pain management and i really don't recall it being horrible and within a week's time i was back in nj and going to grad school and for all intents and purposes back to normal.


it's been a whirlwind and quite frankly devasting and am hoping and praying for the calm.


i know i can't look back now and I am grateful for the 8 years of deluded belief in an HCM free life, but i now know that i have to be realistic, better informed and an advocate for myself. this website has been a godsend.

sorry this is long but i hope helpful.

[Linda]

Welcome to both Reena and dkell88. - Linda

[cheryl acre]

I had the alcohol septal ablation in Feb. of 07. I did very well for the first 7-8 months. at my return to the U of M in october, my resting gradiant on echo was back up to over 130. Now am going to see cardiothoracic surgeon the first of next month. My insurance requires me to have care within my area if the procedure is available so will see a surgeon in Grand Rapids Michigan at Spectrum Health.

[Pam Alexson]

Cheryl,

Welcome . Please take a few moments and introduce yourself on the hello my name is.. forum. It will be a journey for you , now having to have surgery but others have traveled your path and will offer you their experience.

Tell us more about you and your HCM history.

Pam

[Linda]

Cheryl - Welcome - Linda

[gerry46]

I had a myectomy performed at Northwestern Memorial by Dr McCarthy, January 22th 2008. The surgery went great for me. Northwestern did a great job, relatively small amount of discomfort and back in four day. All the lightheadness and shortness of breath is now gone, along with the grayness in my face. Today I feel the best in thirty years. Off of all medication and doing just about anything I want to do.
One word of caution, if you are planning on a myectomy be sure you choose a doctor and hospital with a lot of expertise in this procedure as this is a complicated procedure.
"Getting off the operating table is not the issue, it is the quality of life after the myectomy."

[Seabee Vet]

Earlier this month I met with my Cardio Doctor at the Minneapolis VA Medical Center for a check up because I am still have energy problems after my Myectomy in January 2007.

After new Echos my Doctor feels that either the protective sac around my heart collapsed, holding my heart tightly and making it harder to beat or the Septum has either started to regrow or not enough was removed. I explained about the scar tissue causing it to work harder to beat and the possibility that my exposure to Agent Orange my have aggrevated it.

He is going to set up an exam by a Team specializing in heart problems to check me out and determine what may need to be done, because he feels I should not be having these problems any longer.

Any thoughts or comments on the value in doing this?

[gfox42]

I'm not sure there's a comment to be made here. Your cardiologist has said, essentially, that they'll do more work to figure out what's going on. But without saying what any of that work might turn out to be, it's hard to comment.

Are these the people who did your myectomy? If you saw an HCM specialist, I'd suggest that you recontact them.

Gordon

[Seabee Vet]

Gordon,

The Myectomy was done at the VA Hospital by Dr. Herbert Ward from the University of Minnesota Hospital, he is the ranked expert in Minnesota on HCM. I have to go through the VAMC to contact him, my present VA Dr. has shown more interest in my condition than anyone else and I have complete faith in him.

Mainly, I was wondering if anyone else has gone through further research to determine what may cause the continued shortness of breath, etc. or if they may have had further surgery in search of an answer.

Bob

[Pam Alexson]

Sorry to disagree w/ you Bob but view the link... this man is the top dog in HCM in Mn.

http://www.mplsheart.org/research/research_intro.asp?rt_id=74


addendum to above : top dog in the non VA world of Mn....too bad these worlds are kept separate in this free country.

[Reenie]

Pam, I think he meant his doctor is the top HCM doctor in the VA system in Minnesota. He has not been able to see civilian doctors for this because of insurance reasons.

[Seabee Vet]

;) I often try to avoid loooong sentences by keeping things simple. So I've caused some misinformation here. I'll give you the long version, instead...

When the VA decided I needed the Myectomy, my doctor (VA) asked if I had any insurance, because they would rather I go to the Mayo Clinic or the University of Minnesota Heart Clinic. Having none, the VA contacted the U of M and Dr. Ward, who is very good, was assigned, volunteered, drew the short straw...anyhow, got stuck with me. I was told by the VA "he was the best in this area". When I met with him the night before the surgery, I felt very comfortable with him and he sounded like he knew what he was doing. He also returned to install my pacemaker, but I have not had contact with him since. I only wish he had been able to do the follow-up, but the VA hospital handles that.

I AM satisfied with the VA Cardio Doc I'm seeing, he has more concern for me than ANYONE at the VA hospital, with the possible exception of my Psychaitrist. Beyond those 2 the entire staff refuses to listen to me or provide any assistance, because they don't think there is anything wrong with me. They were astounded when I had the Myectomy.

At this time, I am awaiting decisions on 2 separate claims that should be resolved in a couple months. I've been fighting since March 2003 for approval of PTSD and Unemployability, but the VA considers both of them "non-service connected", evidently trying to associate both with my HCM and dumping it on SSDI. This is not allowed because the two are not to be considered to affect one another, but the VA refuses to look at my Military records or discuss any of the issues with me. I could get into more long stories here, but they are not related (technically) to the Myectomy.

Lisa, is helping me to determine if Agent Orange may have caused my HCM to become agitated because there is no history of it in my family and I was a "normal/healthy" American boy prior to 1998 when it was first discover. And, so far, the Minneapolis VA has been willing to cooporate with the research. If, it can be established that Agent Orange had any possible effect on my heart everything previously mentioned here will 'go away' and I will be rated 100% disabled. If, not my efforts to be accepted as unemployable (due to PTSD) will render me 100% anyhow. I am presently rated 80% disabled, it's complicated...

THANKS for your feedback and everyone's help, this Community Page has been extremely helpful to me, I wouldn't have a clue as to what was/is happening to me without you. :D

[Pam D.]

Seabee Vet...Your current issues sound so familiar to me. I was diagnosed in Sept. 07, had a myectomy in October 07. I felt somewhat better for about a month after the surgery but then continued to have shortness of breath with little exertion. My physicians kept telling me that it would take at least 6 months after surgery to feel better so I waited. In July I finally went to the ER for the shortness of breath and palpitations where I was told I was in heart failure. A repeat echo was done at this time and my obstruction was still present. In retrospect I believe it was never relieved by my first myectomy and it was implied on my consult at Mayo that enough muscle was not removed during the initial surgery. I had a second myectomy at Mayo Aug. 20th and am at home recovering. The best suggestion I can give you is to ensure the specialist of the surgical team you are seeing. Although I researched the disease and the surgery prior to my first procedure, I was led to believe by my cardiologist as well as excellent cardiovascular surgeons that this was not a complicated surgery and I have definitely been proven wrong. Go to the experts, they are listed on this site as centers of excellence. Good Luck and hang in there, we're tough.
Pam

[Seabee Vet]

I am scheduled to go to the VA Hospital on Thursday at 3:00, at that time a "team of expects" will try to determine what my problem might be.

I have had 2 BAD 'seizures' in the past month. This is the 1st time since the Myectomy that this has happened. About 2 weeks ago my wife took me to WalMart, we walked to the back and I suddenly because disoriented, short of breath and needed to SIT. She got a motorized cart and won't let me shop without one now. Yesterday, I was quietly sitting at my computer, when I started gasping for air, again became disoriented and after finishing my work...and in both instances...laid down and rested, I became VERY sleepy and, although worried about falling asleep, dozed off several times. I took pain pills given to me after the surgery containing 30mg Codeine and 300mg Acetaminophen, I'm not sure if they helped, but after the 'naps' I slowly started feeling better.

I did not go to the ER, although probably should have, but will explain the events on Thursday.

[Pam Alexson]

Bob I am very sorry to hear this is happening to you and it must be very unnerving to say the least and I am anxious to hear how the "team " will find you.
Could you just clarify your terminology of "seizure" as to what happened. Is this the term you give these or did someone in the medical profession refer to these episodes as a "seizure?" Also wondering if you had an actual seizure from symptoms of your HCM that got worse for you at those moments?

It is just a little confusing and i am sure others are also wondering.

Thanks and hang in there...Pam

[Seabee Vet]

Hi Pam,

I chose the term 'seizure' for lack of a better explination. This event comes without warning, in both cases I was having a normal day and around 2:00 in the afternoon I suddenly start gasping, become dizzy/disoriented to the point of feeling like passing out, my chest aches where the incision was made and I need to sit/lie down. This event is VERY similar to what I experienced prior to the Myectomy. Unfortunately, the VA tested my lungs, gave my several Echos and an EKG everytime I went in, and until the surgery believed there "was nothing wrong with" me.

There is no other choice for me, but to go to them. Because I have suffered from PTSD since 1968, I could never stay employed long enough to gain any form of insurance or retirement benefits, the VA is all I have...and I could get into an even longer story about the abuse I have received from them for having PTSD and HCM. Everytime I request help the VA asks if I'm "still collecting SSDI" and denys further benefits. My problems are blamed on HCM and therefore, NON-SERVICE CONNECTED!!!

[Pam Alexson]

That makes sense Bob ....I found a very interesting story about a particular family's journey with HCM and in it the writer refers to the episodes as "heart seizure."

Tragic story but a good read:

http://washingtonstate.scout.com/2/13411.html

Pam

For accuracy you could probably define your episodes as presyncopal in nature :

http://pediatriccardiology.uchicago.edu/PP/syncope%20body.htm

[Seabee Vet]

I'm back!!! ;)

Met with my 'team' of one last Thursday at the Minneapolis VAMC. She did my blood pressure 4 times, came out with 147 over 79 average and after almost 2 hours of talking about my expierences has pretty much eliminated anything to do with the HCM. She will meet with Dr. 'T', my cardio doc, to discuss my high blood pressure and 2 seizures. The seizures did surprise her. She said my Aorta valve was small, (typical in females, moreso) and could be the cause of the chest pains and elevated blood pressure.

I talked about the Agent Orange situation, but she made no response, I also mentioned this site...again, no response.

While in the waiting room, I noticed several 'flyers' tacked to the Bulletin Board about HCM, but noone there seems to know anything about it. It's very frustrating to deal with these people, who pretend to know so much, but give me blank stares when I talk to them.

[Reenie]

My mother in law was having similar episodes to yours and she had very high blood pressure, like about 190/90. She has not been diagnosed with HCM, although I'm fairly sure she at least carries the gene for it even if it hasn't manifested in her. I hope you get answers soon.

[MissyH]

I'm back!!! ;)

[FONT=Comic Sans MS][COLOR=#000080]She will meet with Dr. 'T', my cardio doc, to discuss my high blood pressure and 2 seizures.

While in the waiting room, I noticed several 'flyers' tacked to the Bulletin Board about HCM, but noone there seems to know anything about it. It's very frustrating to deal with these people, who pretend to know so much, but give me blank stares when I talk to them.

Nice 'team'....sounds like they sent you to a nurse pract. under one of the cadio drs.

Just wondering who Dr. 'T' is as Tony goes to MVAMC also and has seen many of their Drs. but I can't think of who that is. His head card. at this time is Dr. Annod (not sure about spelling). My verdict is still out on him right now.

Tony had some of his best care under Dr. Ward when he was on staff a few yrs. ago. Very knowlegable and great bedside manner. Too bad he only comes in for occassional surgeries now.

Curious...What waiting room did you see the flyers in? I have never noticed anything about HCM tacked up before and would like to check it out when we go in Nov.

-Missy

[sklein13]

I had my myectomy, valve replacement and ICD surgery March 26, 2008. I am doing good. I am new to this site and trying to find my way around as weird as this may sound it is comforting to know that others are out there and almost everyone has had my same experience with HCM.

[andiS]

I had septal alcohol ablation done at U.W. in Dec. 2008 was diagnosed in 2003 with hypertrophic obstructive cardiomyopathy. This was my 2nd opinion before going ahead with ablation. I chose the U.W. & Dr. Douglas Stewart did the procedure.. going for a 3 month check up today. Feel good, did have some problems right after procedure with a junctional rhythm for several days. :D

[Seabee Vet]

Nice 'team'....sounds like they sent you to a nurse pract. under one of the cadio drs.

Just wondering who Dr. 'T' is as Tony goes to MVAMC also and has seen many of their Drs. but I can't think of who that is. His head card. at this time is Dr. Annod (not sure about spelling). My verdict is still out on him right now.

Tony had some of his best care under Dr. Ward when he was on staff a few yrs. ago. Very knowlegable and great bedside manner. Too bad he only comes in for occassional surgeries now.

Curious...What waiting room did you see the flyers in? I have never noticed anything about HCM tacked up before and would like to check it out when we go in Nov.

-Missy

Sorry for my slow reply Missy, Dr. "T" is Dr. Tholakanahalli...that's why he is called "Dr. T". When I first went to Cardio (3D) Dr. Li was assigned to me, he moved up to more important duties...thankfully. He and my Primary, Dr. Hanson, until 2006 (from 2003) thought my HCM was 'a joke'. When I was sent to Dr. T, he IMMEDIATELY met with Dr. Ward (October 2006) and told me I was going to have the surgery and I had nothing to say about it. I went in in January 2007.

The MVAMC is NOT very concerned about "nonservice connected" problems and tries to ignore them. Dr. Ward is now at the U of M and is called in when needed to the VA.

I saw the 'flyers', probably in a rack in the Pulmonary Clinic waiting room on 3rd floor, I belive that 3B or C.

andiS
My present VSO (Veterans Service Officer) in Dakota County has the same heart condition (HCM). She went to Texas twice for Septal Ablation and neither has worked. Last week she finally went to the Mayo and had the Myectomy, I have kept in touch through the VSO Office and she is home recuperating and doing fine, now.

[ehsremle]

I have had the myectomy at Mayos on May 20, 2008. This past year has been great. This year I am going on the annual canoe trip to Northern WI and then back to whitewater rafting in WV in the Fall to celebrate my 80th
birthday with my family.
Elmer Schirmer, Naperville, IL

[slaterbab]

I had a septal myectomy on June 10th at CCF with Dr. Smedira. Now almost 3 weeks past I'm doing very well...feel better and stronger each day. Had a little bout with a UTI and some oozing from the chest tube site, but a strong dose of anit-biotics seems to be helping with that. I miss driving and feel a little housebound, but have friends and relatives who try to get me out every now and then. Start cardio rehab eval next week and see how much of that I want to get involved in. It's amazing how well you heal from such a major surgery. Onward and upward. Christa Slater:D

[womanz]

I was diagnosed with HCM the end of June, started medication July 7th, saw Cardiologist July 8th and had AICD put in July 10th. I am now being referred to Mayo for further treatment.

[Florida]

Hello everyone ,
I am now 5weeks post Septal Myectomy I have enjoyed this site . I wish I knew of it before long before i was hospitalized and had to have a myectomy .
I did not realize how bad my symptoms realy were . it had become normal for me the last 2 years I knew something was wrong , I just had no idea what it was .

Thank you for all the info .

Have a great day :D

[Florida]

I am now 5 weeks post op. I am happy to here you are feeling better . I also miss driving myself places . My wife is going crazy because i always want to go someplace. It only gets better as each day passes . Get envolved as much as possible . Have a great day

[Linda]

Womanz - Welcome - glad you have found us, sounds like your doctors are lining up the best care for you and you already have your visit set for Mayo. I would suggest you post an introduction as a new tread under the "Hello, my name is". I think more people will see it and welcome you to the HCMA.

Also, feel free to call the HCMA office, introduce yourself if you have not yet done so.

Looking forward to hearing more from you - Best wishes - Linda

[Dedee]

I had a myectomy June 15 2009. I see a definite improvement in the frequency of my feeling short of breath, but I still have some recovering to go and each day gets better.:p

[Woody]

Im having a Myectomy Nov 9th, this Monday.

Gene

[amykmor]

Are you having it at Mayo?

[Loutinmanswife]

I am scheduled to have myectomy two weeks from today at the Mayo Rochester. I am very frightened and my husband is in for a rude awakening.

[outlander]

Looks like it's been a while since anybody contributed to this thread. I was advised by my cardiologist to look into Alcohol Septal Ablasion. So I have an appointment at Johns Hopkins in October. We'll see how that goes.

[sturner]

Looks like it's been a while since anybody contributed to this thread. I was advised by my cardiologist to look into Alcohol Septal Ablasion. So I have an appointment at Johns Hopkins in October. We'll see how that goes.

Outlander..
Did your doctor explain why an ASA instead of a myectomy? I am trying to evaluate the two options..

[dale7010]

Septal Myectomy