View Full Version : IM a absolute wreck
09-05-2011, 06:15 AM
was admitted on thurs. to Tufts. The SOB was still very bad. had an echo and an NPO Stress test. did not do well on stress test. had 2 heart failure doctors talk to me a few days ago. there are a team of doctors who will be evaluation things. we even touched upon heart transplant info. but didnt get into details. I Hhave a right heart catherization scheduled for tomorow and i guess they can find out hoe weakened my heart is. All i'v been doing here is crying...my husband calls me crying...it doesnt see like reality. i thought i would be in my 70's to get to this point...if there is ANY information, comfort or experiences i would like to hear them. i'm trying to keep it together and not doing well
09-05-2011, 09:41 AM
I'm so sorry to hear this, Cynthia. I have no words of wisdom but I'm sending you hugs and prayers.
09-05-2011, 10:00 AM
I'm really sorry to hear this. I hope the heart cath and other tests clarify what's going on.
09-05-2011, 11:20 AM
Cynthia. Sorry to hear of this development. I so hope there is something that can be done to give you relief. Prayers as you enter this phase of the HCM journey.
09-05-2011, 12:34 PM
Cynthia - Thinking of you and hoping for the best. Stay strong.
09-05-2011, 01:31 PM
Cynthia, you are at the right place to have these issues addressed. It may take a little time to get the answers you are looking for, but try not to let your head get ahead of the rest of you. Wishing you quick answers and a plan that is designed just for you.
09-05-2011, 04:21 PM
Cynthia - LindaSo's advice was good. I know things seem frightening and desperate, but focus on any positives you have (beliefs, family, even Oprah) and once you have some insights from the pro's there, then you can make a plan - I know its easy to say, but only worry on what you know and not on what you don't. You've got a great team there and you have your entire HCMA family sending out positive thoughts and prayers.
09-05-2011, 06:33 PM
Cynthia - I can certainly understand you feeling a wreck! You've been having a very tough time of it and coping is much more difficult when you feel so bad. I'm glad you seem to be lining up the best plan for you - will be watching for updates, sending prayers and best wishes for you and your family.
09-05-2011, 07:05 PM
Cynthia, I got your PM and will be getting back to you tonight.
09-06-2011, 07:08 AM
Set aside time each day to privately pray to the Lord - no one knows you as well as he does! Pray for yourself, the doctors, the treatment plan, the hospital staff, your friends and family, those you know going through similar issues. I always hear his voice the loudest when I'm the most desperate! I successfully prayed my way through a job change, the financial crisis of '09, illness in the family, personal projects, and now my HCM (which is ongoing, for sure). I just prayed for you and hope things take a positive turn real soon!
09-06-2011, 07:36 AM
thank you so much...i've been doing that every day
09-06-2011, 02:58 PM
Cynthia I just read this and I am sorry to hear this. I started another thread that you replied to regarding the Triponin levels. I was in the ER this weekend and waited all weekend in the hospital no to wait until Thursday to do my stress test. All I can say is your NOT alone here. I am en engineer so I like the inputs you got take it one day at a time and get the information you need to make the right choices to your plan to get better!
09-06-2011, 07:34 PM
Hopefully you didn't find the heart cath. today too unpleasant,you're in a good place with great Dr.s that are determined to help you and you have many friends here that care and are praying for you. I'm sure that inner strengh will find and fill you to continue forward through this difficult time, keep the faith, and God bless you!
09-07-2011, 05:42 PM
Hugs and good thoughts heading your way!
09-08-2011, 12:50 PM
Sorry to hear about what you are going thru. Sending my best, my hopes and my prayers to you, your family, and your heartcare team.
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