friends

[purple_ness1]

Hey

how it going ?
does any way have issise with friends and trying to tell them about there heart condition, what have you done about it?
at times its almost they wont to get as far away from me talking about it as they can
i told my friend the other day my doctor wonts to go down the tranplant road and it took me ages to come up with the guts to say that to them and all they said was "ok do u wont another drink"
its almost like they will do anything not to talk about it.
i dont get it , does it freak people out ?
these are friends that are good friends too ones that i thou would b there for me no matter what

well sorry had to have a bit of a rambal

Margi

[bulybuly]

Hi Margi

That is so hard! I've had that with various situations in my life--deaths of other relatives etc. and even now when I share about my daugther's condition. I think it's often 1) Denial or 2) Fear 3) Lack of experience so they don't know what to say--- give em time, and also find those that "get it" to talk to---at least one or two folks. Do you have that in the group? You've got this group for sure!

I find the hardest is when someone starts crying when I share hard news---ugh, that's not a response that's helpful for me.

Best to you-

Marsha

[ssavage69]

Maybe, they don't want to think about you being ill? it probably scares them also. I think it is like when someone tells you they have cancer, and you are at a lost for words, because, everyone usally just says, oh, i am sorry to hear about that, and hope it gets better. They care but ,its just hard to understand what you are going through. I think that is why I like this forum so much, everyone on here understands ,what the other person is going threw or to some extent. Good luck, have they tried other surgerys? or are they just thinking about the transplant first?
sherry

[Hrtofwmston]

Most of my friends have known that there was something different about me since elementary school, and that became even more pronounced in sixth grade when I had my myectomy and was gone for a couple weeks. I find if I only bring it up when I need to then i never have a problem talking to people. Like, if a new friend wants to go play soccer/football/etc... I just explain why I cant in general terms and flash the scars. (Myectomey "Zipper" and ICD scar which almost make a cross on my chest :) )