Wanna smile - read this...

[Lisa Salberg]

Hi all,
Sometimes we hear stories that are so up lifting we just have to share them! Please read this one!

http://www.4hcm.org/WCMS/index.php?id=83,260,0,0,1,0

Best wishes,
Lisa

[Midge Rollins]

Good for her!!!

[progers]

This story really makes me think about how great the HCMA community is. In a word, the HCMA empowers all of us, though great discussion, articles, newsletters, all of which increases our knowledge. This site has taught me to think for myself and to challenge doctors, some of whom just do not understand just how complex HCM is.

Cheers,

Paul

[Lisa Salberg]

Paul,
Thank you that post means a great deal to me.
Lisa

[Pam Alexson]

GREAT STORY and sounds like a journey many here have sadly had to take..

IF not for the HCMA where would any of us have been in that journey. It sends shivers through me to think of the alternative that so many may have faced and some have... had they not come here to the HCMA to find expedient and appropriate intervention.

There are so many more out there who may be hesitating and feeling that perhaps their doctor or doctors are correct and have all the answers.

I have thought about this myself many times. I was one who strongly felt that once I went to a top 10 hospital and found a set of doctors who agreed w/ my self diagnosis and I was able to finally pull myself away from my local cardiologist( who was wrong ), that it it was a done deal. This was so far from right, it was only for me ..part of the journey. It took going to another hospital( not a top 10) w/ an actual formal HCM clinic to realize that once again there were better and life saving options that were not available or rather OFFERED to me at the place where my diagnosis was first validated and confirmed.

This is why it is so VERY important to stay involved , educated , up to date and MOST OF ALL CONNECTED to THE HCMA.

Things change, technologies do evolve and sometimes it is those who know the most who realize how each individual may fit into a difficult equation and help really may be available for some of the most challenging cases. With that help there is hope that more and more options will be understood and someday be available to more and more unique HCM individuals.

If we learn only one lesson from this one women's journey, it should be that she instinctively knew that there had to be BETTER answers. She pursued it and fought for those answers she used an INVALUABLE tool, she used her determination, her will to survive, to find answers to her many questions, she found an organization; the HCMA that connects people to the correct answers, the best paths to try.

Pam