Looking for specialist

[mrdonpan]

Hello, I'm new to the group and looking for a speacialty clinic or doctor in the South East. I live in Miami, FL. I've had HCM since 17 years old and now I'm 28. I've never seen a specialist and just kept up with my cardiologist, but I'm ready for something new. Currently I am taking lisinopril 20mg to control HTN, but I'm looking to change to Beta blockers. Well if anyone has any suggestions as to a clinic near the South east then please advise. I've heard of Tufts in Boston...anybody been there?
thanks,
Gabriel

[Cynaburst]

Actually, I believe that there is a specialist as close to you as in Weston, FL.

Dr. Craig Asher is at the Cleveland Clinic branch there near Ft. Lauderdale. You might want to start there.

[Pam Alexson]

Welcome Gabriel.

Yes, Cyn has started you off on the info trail. Please take a moment and also contact the good folks at the HCMA office . At the bottom of the page see: contact us.

I go to the HCM center in Boston;Tufts New England Medical Center and it is a wonderful place to go, be assessed accurately, by experts and get specialty treatment for ones HCM. Many travel there and are not disappointed. I am VERY fortunate to live in the northeast and have easy access. Dr Maron et all basically... really, saved my life. I was very ignorant about HCM early in my journey and what was and WHERE the BEST treatment available was for me. THANK GOD for LISA SALBERG and the HCMA. I am here to tell you there is hope and accurate superior help.

All members here who have traveled to a specialty center or at least a specialty doctor, know immediately the importance and the difference in how their treatment is now comparatively and what could have been done differently. I am a very strong advocate for early, accurate intervention of HCM. I do believe that many of us were harmed and therefore are worse off as a result, due to delay of the best treatment. I am living proof of that.

Pam

[Reenie]

I agree you need to see a specialist. Tufts NEMC is a great place to go, but Cyn's right about there being people who understand HCM nearer you. If you need intervention like surgery you may have to travel further, though. I'm a little concerned about your medication. Usually lisinopril isn't used in HCM patients. It's an ace inhibitor and they tend to make the heart work harder, which isn't something an HCM heart needs to do. Getting to a specialists who understands HCM better will help you make good choices in your care and help you be informed to help direct your health care too.