2 new research protocols in HCM!

[Lisa Salberg]

We in the HCM community have been long asking for better treatments and options to help us better manage our condition. While we are a long way from answers we are on the right track to possible answers.
Dr. Martin Maron at NEMC and Dr. Carolyn Ho at Brigham and Woman's Hospital, both in Boston have new research grants to answer many questions related to HCM.

Dr. Ho is looking at the development of HCM in those who are geneticly positive but have yet to show hypertrophy. Patients are give a medication, a calcium channel blocker, to see if it has an affect of the way the heart develops.

Dr. Maron is looking at the use of a spironolactone a medication used for years in other forms of heart disease to evaluate if it can reduce scaring and LV mass. Patients with HCM and whom have not had septal reduction are eligible for this study.

For more information on either of these protocols please call the office.

Best wishes,
Lisa

[shirleymahoney]

That is weird that Spironolactone is being tried I've been on it in high doses for over 4-1/2 years now I take 200 mg a day but I have had a septal reduction, Good Luck in finding results in these studies

Shirley

[Benjamin]

We in the HCM community have been long asking for better treatments and options to help us better manage our condition. While we are a long way from answers we are on the right track to possible answers.
Dr. Martin Maron at NEMC and Dr. Carolyn Ho at Brigham and Woman's Hospital, both in Boston have new research grants to answer many questions related to HCM.

Dr. Ho is looking at the development of HCM in those who are geneticly positive but have yet to show hypertrophy. Patients are give a medication, a calcium channel blocker, to see if it has an affect of the way the heart develops.

Dr. Maron is looking at the use of a spironolactone a medication used for years in other forms of heart disease to evaluate if it can reduce scaring and LV mass. Patients with HCM and whom have not had septal reduction are eligible for this study.

For more information on either of these protocols please call the office.

Best wishes,
Lisa

Hello Lisa,

Thanks for all of your hard work. We really appreciate it. I will call the office regarding the research that Dr Maron is conducting. Thanks for the update. Take care.