View Full Version : Today on NPR...HCM!
09-04-2007, 06:01 PM
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Tue, Sep 4, 2007 -- 10:00 AM
Investigating Hypertrophic Cardiomyopathy
The program looks into the heart condition hypertrophic cardiomyopathy, which can lead to sudden death during strenuous exercise.
Host: Michael Krasny
Euan Ashley, director of The Hypertrophic Cardiomyopathy Center at Stanford University
Joshua Davis, contributing editor at Wired Magazine
Lisa Salberg, president and founder of the HCM Association
09-04-2007, 06:34 PM
The audio is available on our website at: http://www.4hcm.org/WCMS/index.php?aid=239
09-04-2007, 06:42 PM
You have never sounded better! This a great report worthy of NPR's reputation!
09-04-2007, 07:14 PM
Dr. A had told me that he was going to be on the show last week. I had no idea that you would be on as well, but it was great hearing you. I was very impressed.
I also am the one that called with the genetic testing concerns for my kids until G.I.N.A. passes. :D As I had hoped, you were then able to raise the issue of how it is being held up by one man in the senate. Thanks for jumping in with that nugget.
09-04-2007, 07:50 PM
I was wondering who that was, I am so glad you posted. After the airing we received many phone calls as result. I was happy to see how many calls came in from all around the country!! Thank you for calling and such a good question too, you gave me the chance to tell the entire country to call Coburns office!
Thanks for the kind comments!
09-04-2007, 07:59 PM
You are so very welcome... it is almost the least I could do. I am glad you got so many calls. I really hope that this is addressed and soon. Wouldn't be great if someone in the press held this man up to ridicule for holding this up.
Also, I hope that all those out there that may not know their risks, or are undiagnosed can get to the right informaiton that keads to getting help.
Thanks for all the work you put into this.
09-05-2007, 02:04 AM
I listened to every word and it was great! way to go lady!!!!!!
09-05-2007, 07:37 PM
I heard the whole forum. All you can say is thank god we have you. You have put the word out there for all of us. Thanks to your support and fight.
09-07-2007, 06:07 PM
oh boy...I missed it! I listen to NPR all the time but was at work when it aired. Way to go!
09-08-2007, 12:48 AM
thanks for the npr broadcast. i kinda got choked up, it was like a validation of living with this disease all my life - being diagnosed after a brothers death in 1978 and there are people who understand. from making long trips as a teen-Dad packed the family in the station wagon and traveled to st louis from southern illinois, and to mayo clinic on my behalf. and finally to the nih in bethesda maryland. two catheter catherizations. yearly ekgs, lung xrays, stress tests, other tests which i have forgotten the name of. numerous doctors, some moved, others retired. finally to receiving an icd this year.
again, thanks for pointing me to the npr broadcast.
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