Hi I'm new

[chrissy21]

Hi My name is christina and i am 22 years old.

i found out that i had hcm last year and was immideatly implanted with a ICD , I have a 2 year old son and i pray every day that he will be ok.. I have support from my family, but i find it hard at home since my husbund does not know what to do!! Somtimes i feel like all i want to do is sleep and if i dont get the chance , because he does'nt help he just thinks i'm lazy i get really bad palpitations.. and very dizzy, i get afraid because i want to be there for my son and do things with him all the time but there are times that i just cant, and then i feel guilty! How do i make people understand that these are syptoms from my disease.. I need more emotional support because they just dont understand! I am afraid .. and i over work myself everday with school and the baby and always doing things for others! I just want to know what to do??? Thank you
LIVE ONE DAY AT A TIME!!!

[Reenie]

Hi Christina. I'm glad you've found us. I'm sorry that you aren't feeling well and you don't have much support at home. I hope you can get your husband to come here and read about HCM on the main site and also on the message board. Hopefully then he'll understand you aren't just being lazy. If you get a chance, please call the HCMA office at 973-983-7429 and talk to the staff there. They may have more suggestions for you.

Reenie

[purple_ness1]

heya

sorry 2 here thinks anit doing 2 well for u , why not get ur husborn 2 read ur post and maybe he would be able to give u more support ,its very easy 2 not relise whats going on in sumones head and not give them the support they need becos of it .

hope things get better 4 ya and i know what u mean about people thinking ur lazzy people do it 2 me 2 try not let it get 2 ya , people fear what they dont understand

take care
*margi*

[JohnM2]

Hi Christina,

Margi has an excellent point there. I've noticed the same thing myself when dealing with my health problems and those of my wife. It's a lot easier to understand our own than it is to understand what's happening to someone else, especially if the signs and symptoms aren't visible. It's easy to be sympathetic about a severe cold, or a broken leg - these things are easy to see. But to be sympathetic to things like fatigue, or palpitations, or angina, which aren't seen (or heard, or felt, or smelt, etc) is not so easy.

I agree entirely with the others here. Try to persuade your husband to look at this site - both the forums and the main pages. If he can be persuaded to spend a bit of time reading about the problems caused by HCM, then he may become more understanding.

In the meantime don't let it be the subject of rows and quarrels - that won't help. Sometimes we just have to put up with our spouse not understanding what we are going through. In my marriage (39 years in June), both myself and my wife have at times been guilty of not understanding the problems facing the other one, and in that case we have just carried on as best we can. Eventually, the other one does come to understand what was going on - or in some cases the situation simply passes on without ever getting resolved that way (this would not normally be the case for medical matters).

I wish you well, and hope you will find the support you want here (I'm quite sure you will) and don't hesitate to post any questions (the only stupid questions are those that aren't asked ) or even use this forum to just let of steam - you will find quite a few posts which are just rants.

Best wishes

John