Prayer Request for Pediatric Testing Appointment

[amyshields]

Hello everyone!

I would appreciate prayer as my husband and I drive 1 1/5 hrs. tomorrow (Dec. 19th) to visit the pediatric cardiologist. All four of our children (11, 8, 3 & 2) will be tested for HCM ... thanks to my recent dealings/diagnosis with HOCM.

We are praying that they are all spared this disease but realistically know that the odds are not too good. All of this is in the Lords hands. Early detection would be best so we can face this head on and become well informed.

Thank you for your prayers! They mean so much!

[Reenie]

You've got it. I know the anxiety testing brings.

Reenie

[Stuart Schwartz]

Amy,

Hopes and prayers are with you.
Have a safe trip.

Stuart

[Abbygirl2]

Good luck with the kids appointments, may they all be HCM-free. Let us know how they make out.

Take care
Pam

[Largehearted]

Amy.

You can count on our prayers as well. I know the anxiety each time we get our kidsa (9-11) checked again. May you experience much peace in the midst of this storm.

Leon

[Cynaburst]

Amy - My thoughts and prayers are with you as you go through this. We had a scare with my son who is 4 a few weeks ago, and although it turned out ok for the moment, it was very scary even though I have always known of the risks.

[Deborah H.]

Dear Amy,
You and your children will be covered in prayer from here. My daughter is 8 and will find out at Johns Hopkins on Wednesday when they will schedule her ICD implant. I am currently living by the power of prayer from others and hope you too will have "the peace that passes all understanding"
Deborah H.

[Lisa Salberg]

NJ Prayers...checking in!

Good luck!

Lisa

[Midge Rollins]

Amy, prayers are sent your way.

[shirleymahoney]

Prayers are coming your way from Virginia also :D

Shirley

[Laoshur]

Praying in Beijing for a great Christmas present of good news for all of your children!

Rhoda

[amyshields]

Thank you all so much for your prayers. That support means so much!

Our appointment went very well. So far all 4 kids are HCM free. Of course, we will test again in a year but we are remaining positive.

The Dr. did talk to me about my family history while we were there. At this point, we know of no one on either side of my family that has died suddenly or had a cardiac issue that could be related to HCM. This Dr. we saw mentioned that it is possible I have a mutated gene and it will end with me. I hadn't heard of this before ... anyone have thoughts on this?

Again, your prayers were felt and appreciated! Thank you!!!!!

[THW]

Amy,
That is great to hear! I just pm'd you asking about it, so just ignore it!
Take care.
Theresa

[Pam Alexson]

Great News Amy. Now you can relax a bit.

Pam

[Reenie]

I'm happy to hear they're all clear for now! About the mutated gene that might end with you - that may be true, but unless you are genetically tested and have your mutation ID'd then have the kids tested, you can't know. I wish it was simpler, trust me. I'd have my own kids tested right away. :) If you passed the gene to a child, they will carry it and most likely develop HCM too. There's a 50% chance that you passed it on to each kid. So statistically 50% of your kids will get the mutation and get HCM. However, if they got the lucky 50% and didn't get the mutated gene, they won't develop HCM, and the strain ends with you.

Reenie

[amyshields]

Reenie,
Thank you for explaining all that gene stuff :) I have a lot to learn!

Mayo is doing genetic testing on me ... we will see what their data shows (could take up to a year) and go from there.

All our kiddos will be tested annually. The expense is a bummer but MORE than worth the peace of mind :D