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View Full Version : Beverly's heart donated to science


SteveT
11-23-2005, 12:23 PM
Hi folks,

During Beverly's initial consultations with Dr Barry Maron a year and a half ago, we learned that she had a very rare presentation of HCM, where the hypertrophy was "inverted". Because of this we made the decision to donate Beverly's heart to science. It will be kept at the Jesse Edwards Registry (http://www.unitedhospital.com/ahs/united.nsf/page/registry)so that it can be studied by cardiologists from around the world for years to come.

Steve
Glen Beamish
11-23-2005, 12:47 PM
WOW, that's pretty incredible.
Would she be able to see it or would she even want to??
Glad she's doing so well.
BlueDevil
11-23-2005, 01:50 PM
I asked about this myself on Monday when I had my first follow-up appointment at the ICD clinic and with the transplant doctor overseeing my care. My HCM isn't so unusual, but one of my valve leaflets is very unusual, so much so that Maron, Sr. said he'd never seen one like it in the entire time he's practiced medicine.

Would she be able to see it or would she even want to??
I don't know about her, but I'd like to see mine after they yank it out.
shirleymahoney
11-23-2005, 02:19 PM
Wow!!!!!!!!

That is great news just think your heart will be part of medical history


Shirley
Glen Beamish
11-23-2005, 02:27 PM
Ya, it would be pretty interesting to see something that has been pumping in your body for years.
Scott Stanley
11-23-2005, 04:10 PM
Hi, everybody. I can answer the question of seeing the old heart. I have pictures of mine, it had been cut up but we had the option of looking at it. I have to say it was pretty interesting, and it also showed me how bad of shape I actually was in.

Scott Stanley
Beverly
11-25-2005, 09:11 PM
Hey everyone,

I was the one who wanted them to save my heart before sending it so I could see it but that didn't work so yes I will be seeing that nasty heart that was the gift from God that gave me 28 years of life. I can't wait.

Beverly
Glen Beamish
11-26-2005, 06:58 PM
That's great, you've been given a incredible gift and even though I am not there I can feel your excitement about getting on with the rest of your life
Good Luck & Stay Well
Glen