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angall
10-18-2005, 09:32 PM
As I had previously posted, I went to PA to visit my daughter. I ended up staying longer than expected due to A-fib and congested heart failure. I flew back to MN on Thursday, Oct 13th.

I made an appointment with my Cardiologist at Mayo for Monday, Oct. 17th. Again, a heart transplant was mentioned.

On Monday night, I went to bed at 9:00 p.m., woke up at 10:20 p.m., got something to drink, came online for about 10 minutes, went to the bathroom, then went back to bed. Immediately I began having shortness of breath, tingling in my hands and feet and sweating big time.

I woke my husband and he took me to our local hospital. After a few "not knowing" experiences by the staff, I finally told then that I wanted to see my family doctor or be transported to St. Mary's hospital in Rochester.

Finally, they decided to transport me. I was taken to the ICU at St. Mary's where they ran various tests. At 4:00 a.m. (Tuesday) I was taken to the 4th floor.

I was seen by many doctors and by my cardiologist. When they compared tests done in the past to the tests they did today, they came back with an option for me especially after reading the results of a treadmill test I had done earlier this year. They told me to they are surprised I can do as much as I can and they advised me to go on disability and go on the transplant list. I could hardly believe that the treadmill test I had done earlier this year was so bad. I have been working 40 hrs. a week, but I have been missing more time because of shortness of breath and fatique. My house work has been suffering, too.
They told me my heart will only get worse because it is so stiff.

I talked to my cardiologist about working and she will allow me to work 4 hrs a day for three months unless I can't handle that amount of time. In the meantime I am going to file for disability. I must stop smoking or they will not even think about putting me on the list and then I must talk to the heart transplant team.

I can only say that I didn't think my condition was so bad. It's like I told the doctors today, "I have seen so many people that have a worse health problem than I do, especially children, that I don't think of myself as being serious ill".

The doctors told me that I shouldn't have a difficult time getting disability with the numbers they have on file. Of course I would rather work, but it is coming to the point where I have a problem getting dressed for work in the morning.

Sorry for the long post. I just wanted to put into words how I feel.

Thank you for reading.

Midge Rollins
10-18-2005, 10:54 PM
Esther, am so sorry you are not feeling well. You are in the right place. Dr. Edwards and group will take good care of you. Please keep me posted on where you are as I will be back in Rochester on Nov 7th and if you are still on 4 Dom I will come and meet you. If you get the chance go to the heart support group on Monday's at 4. The nurses will take you if you are still in the hospital. It is a wonderful group and helps with alot of the emotional issues. Good luck and God Bless.

Reenie
10-19-2005, 12:39 PM
I'm sorry to hear of your recent problems. I hope and pray that the disability will go through without a hitch and you are able to go on the transplant list quickly. Work on giving up smoking first. I know it'll be tough, but you can do it!

Reenie

shirleymahoney
10-19-2005, 01:07 PM
I'm so sorry you have got to the point you need the transplant, if there is anything I can do please don't hesitate to ask ok, i have done the quitting smoking deal and it is tough but it can be done, I chain smoked for 30 years and i did it, I decided when i had my surgery that was it no more angall I will keep you in my prayerthat everything will work out for you


Shirley

Linda
10-19-2005, 03:09 PM
Esther, Wishing you the best - lots of prayers coming your way. Good luck with the smoking! Linda

Abbygirl2
10-19-2005, 06:46 PM
I hope you are able to accomplish the things that you need to in order to get your new heart. My thoughts are with you.
Treat yourself to some R&R!!

Take care,
Pam

angall
10-20-2005, 12:53 AM
Thank you everyone for your prayers and posts of support.

Needless to say I so am scared.

Midge.... I certainly would like to talk to you for a better understanding of what to expect. I know that no two people are alike, but a little bit of knowledge may help.

I know I will just get worse as the time goes on. The Dr. in Rochester told me that if I was on the transplant list, I would be near the top.

I know the procedure of waiting will be difficult, I just pray that I can endure the thoughts and possible doubts that may pop up.

Again, thanks everyone. It means so much.

Take care

karen cicconetti
10-21-2005, 08:35 AM
Being scared is very normal. But one thing that will help is to talk to people who have been trough it. If their is anything I can do I'm A good listener . And maybe I can answer some questions fore you. Having people like we have here on this forum will be a great help for you, their true love and caring Will help on those bad days. If you need me pm me and we can talk.


Love
Karen

Pam Alexson
10-21-2005, 05:12 PM
Ester,

My thoughts and prayers are with you during this time . I know you will be in good hands and get all the best care and preparation for your new heart.
We are all here for you.

Pam

Sheila and Paul
11-22-2005, 12:17 PM
Hi Ester:

All the best - quit the smoking .... it will kill ya! Nicorette worked for me and my brother and I will tell ya, if my brother could quit smoking, anybody can - and he did great with the patch. Me, years ago, the gum worked great ... I never chewed so much in my life, but hey, it did work. You can do it!! I believe in you!

All the best.

Love Sheila and Paul

angall
11-22-2005, 01:36 PM
Thank you Sheila & Paul.

I do believe I am on the right path. I recently had a dr's appt. & talked to him about the patch. He said he believes in me and knows I can kick the habit. Blue Cross/Blue Shield has a program to help someone stop smoking. I have called them and got details. They told me to set a date as to when I wanted to quit smoking. I've done that and intend on seeing it through.

Thank you for your words of encouragement.

Take care