Whats the difference!

[RayRay]

Hello all,

I'm a recent member to this website and to the disease.

I was wondering whats the difference between non obstructed and obstructed?

Also, I have an appointment with a cardiologist at the end of August, I was wondering if anybody had any ideas on what should be asking him?

Thanks, Rachel

[Lisa Salberg]

I would suggest you take a trip though the website and read the pages "what is HCM" and review the graphics on the site for a more complete explanation.

In short obstruction refers to the blocking of blood from leaveing the left ventricle, this is caused by the mitral valve hitting the septal wall thus causing the blockage. Obstruction can occure anywhere in the ventricle but is most common at the top of the septum. Obstruction is measured in "gradients" , a normal gradient is 0 anything under 15 is concidered mild. Gradients of 30 or greater are significant enough to concider more aggressive means of threapy.

Please call the office on or after Wed this week I will be back in after that time and we can discuss this further so that you are well prepared for your doctors appointment.

best wishes,
Lisa

[Stuart Schwartz]

Rachel,

Welcome to HCMA.

Most important is finding the right HCM cardio.

I think that after you talk with Lisa you will have a much better picture of HCM and what questions to ask and WHO to ask.

You may find that the information you get on this message board differs from what your local doctors tell you. That was true in my case.
This may be hard to understand being that your new here, but the information here, and most of all from Lisa, is most likely what you want to count on.

Living with HCM is not so bad thanks to Lisa & the HCMA.
Lisa is a special person in all our lives I know you will soon see why.

Our best to you and your brother.

Stuart & Barbara

[Pam Alexson]

Rachel,

Welcome to the HCMA . I hope you are finding many explanations and answers to your questions here. We are all willing and ready to help you understand this disease. There is indeed a lot to take in and it takes time. Early on it can feel very overwhelming so, take your time and ask away.

Pam

[RayRay]

Hey all,
Thanks for the friendly words I really feel welcomed to this site and I feel as the questions come rolling in that you guys will be there to guide me with some answers.

Thanks again,
Rachel

[jmurray]

Rachel,

Your are doing the right thing. Ask a ton of questions. That's what I did and I now feel more educated and in control of my own health. Although most cardiologist are very very knowledgable individuals, I have found that not all (or many) know or understand the workings of HCM or a HCM heart. I went to one of the major centers (mayo) in the US and got good information that I can feel confident with. After your appointment and speaking with Lisa you my want to consider the specialist in Toronto.
This website can be very helpful in both information and just plain support when you need it. I wish you and your brother the best. Keep us updated!

John :D