my update

[everlastingbaby]

I am not doing that great. Things are really messed up in my life. My dad blames himself for me having hcm. I was just dumped by this guy I really liked. I am good with the break up. however there are so many things going wrong in my life. My medication costs $110 for a months supply and I can't afford that, I have already gone a few weeks without taking my meds but I can't do anything to change that. My meds are just too expensive for anyone in my family to afford so I am just starting to give up. So I have no idea what I can do. I tried to get on badger care but I don't qualify. and the cheapest plan I can find is still $30.00/month and that barely covers my meds and nothing else.

[Reenie]

Teri, I'm sorry things aren't looking very good right now. Hang in there. It will get better. In the meantime we're here to listen.

Reenie

[Largehearted]

Teri.

I can see why you would feel discouraged. Do remember that you are not alone. Many of us have been in situations similar to where you find yourself just now. By sharing your discouragement you spread out the load and don't have to carry it all by yourself. Please ask questions and tell us what you are going through. There are so many people in this HCM community who can offer helpful suggestions. We are all pulling for you. I will pray for you as well.

Peace,

Leon

[everlastingbaby]

I finally have a job however I don't get insurance and I don't get payed enough to buy my own insurance. My ex told me that he regrets breaking up with me so we may get back together. I am happy to have a job but if I don't get some meds soon I am not going to be doing good at all I am so tired of all the junk in my life I just wish I could end all of my suffering and all my problems. I know that's not possible but just for one day I want to live like a normal person and not have to worry about having HCM or not having insurance or not having the money to pay back all my medical bills that I have had for a long time. I am almost to the point where I can't handle my life anymore and I just want to runaway and start a new life.

[Sarah]

Dear Terri,

I don't know enough about your situation to give you specific advice on how to get better coverage or medication, but Lisa is an excellent resource. You should seriously email her and ask about options. Is BadgerCare your only option? Does your county or city have anything? Just putting ideas out there.

While it is normal and understandable for your Dad to feel the way he does, it doesn't help you any and only makes you feel worse, since you know it isn't like he did it on purpose. You may want to sit down with him and tell him that you love him and don't want to see him beat himself up over it. You need him to be supportive, and he can't be supportive if he is too engrossed in being sad.

I know exactly how you feel. It would be so great to be free of HCM, it complicates so much. But please hang in there. It won't always be so hard.

hugs,

S

[Toogoofy317]

I know how you feel. I fight daily to keep my insurance with the hospital. My doctor reminded me again that my attempts at work and school is not going to work. She told me I need to pick one. I don't know how to pick one. If I pick school I have no insurance and very little money to live on. If I choose work I won't be able to stay at it too long. The stress is just too much and the money is ok.

I've even applied for disability anc got turned down on that to. So, I know how you feel.

As far as meds go maybe you can ask the manufacturer to help you being that you don't have insurance. And the medical bills well mine are piled up too but I don't really worry about them anymore. They can't throw you in jail or anything like that. Worse case scenario when you get things straightened out then you could file for bankruptcy.

Hope this helps!

MaryS.

[everlastingbaby]

I still love my job! I may have a new boyfriend and I am ok with how things are between me and my ex boyfriend. I am getting back into square dancing and I am so happy about it I haven't danced in almost two years so I am so glad to be getting back into it. Square dancing is a hobbie that my whole family is into and it makes me feel like I belong. The only other place I feel like I belong is on here and I love it I feel like this is a special Family that understands a big part of my life and my square dancing family is another big part of my life. I love both of them. I am doing ok with life it gets really hard at some points and I wanna give up but then I call one of my close friends and I figure it out before I do something I may regret.

[Reenie]

I'm glad to hear things are looking up for you! :)

Reenie