Olivia’s Story

A 17 year old shares her story of HCM.

I was diagnosed at 12 (it took 7 years to diagnose), 2 ICD implants - Impending myectomy.

I have had no genetic testing, but left blood at Mayo Clinic for use possibly in the future. In addition, I spoke with a genetic counselor there as well. My 2nd cousin on my mother's side has HCM. It has been determined that my mother is a genetic carrier, but does not suffer from the disease. I feel it is important to know my family history, but the only challenge is not knowing what specifically my late relatives died from. It is important for someone with HCM to know their family history so they can warn their relatives to get tested for the disease because they are at risk.

By Olivia