BREATHE – You have a long road ahead in terms of learning about your condition. The HCMA is here to help in this process and you need not travel this path alone. This website and the HCMA will help guide you on this complex and sometimes overwhelming journey.
TAKE YOUR TIME – Please do not rush into treatment without the benefit of educating yourself and understanding your condition. Ensure that you have communicated with all relatives to ensure they too can be evaluated for HCM.
GET EDUCATED – Read the HCMA website starting with HCM- An Overview and also visit the “Message Board Community” – you may wish to share your story or simply read how others have handled their diagnosis and management – you are far from alone in the process.
Call the HCMA! – A membership and an hour on the phone with the HCMA can lead you in the right direction armed with the right questions and tools you will need to get the best care and be the best advocate you can be for yourself and your loved ones! Contact the HCMA Monday-Friday 10am to 4pm eastern time 973-983-7429, if it is your first call to the HCMA it is best to call Tuesday - Thursday 10am-3:30pm eastern.
HCM CENTERS – While you may have been diagnosed by a local cardiologist, it is likely that this local cardiologist sees very little HCM and has probably not seen someone with the same presentation of HCM as you have. There are Centers of Excellence in the USA, Canada, Europe and other places in the world that may well provide more comprehensive and up-to-date care for HCM in its many presentations.
GET ON WITH YOUR LIFE! – Living with HCM can be very uneventful in terms of symptoms and activity level. The goal of the HCMA is to improve and save lives of those with HCM – it is possible to have not only a long life – but a life free of significant cardiac symptoms.