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NEW HCMA Booth

Making it's debut at HRS May 2008

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New HCMA Banner

Multimedia clips

NPR: Investigating Hypertrophic Cardiomyopathy
HCMA Commercial
ESPN2 - Quite Frankly
ESPN - Outside the Lines

Media Advisory

Coming Soon

Sports Illustrated December 4, 2007

Following the Trail of Broken Hearts...

Sports Illustrated December 4, 2007


Hypertrophic Cardiomyopathy Association™

 

The Hypertrophic Cardiomyopathy Association is a not for profit 501(c) (3) organization formed in 1996 to provide information, support and advocacy to patients, their families and medical providers.

 

 

 

Lisa and Becca on CBS Evening News!

GREAT NEWS on GINA


May 1, 2008

  • Bill would prevent the use of genetic information for insurance, 
          job decisions
  • House passed measure 414-1, the Senate 95-0
  • President Bush expected to sign bill
  •  

    Welcome fans of CW's   One Tree Hill

     

    News and Current Events

    11th Annual Meeting »

    May 30 - June 1, 2008 - Morristown NJ. The 11th Annual HCMA meeting will include two components a patient/family friendly agenda and a  CME / Nursing contact hour program - all in the same room.  If you are unable to download the PDF version of the agenda call the HCMA office to have one mailed…

    « Click Here to Read More »


    The 10th Annual Elizabeth T. McNamee Memorial Run »

    Come out and enjoy your Mother's Day Morning and support the HCMA on May 11, 2008 in  West Islip, NY

    « Click Here to Read More »


    2008 HCMA Meetings around the country »

    Throughout 2008 the HCMA will be participating in a number of educational meeting across the country.  If we are not planning to come to your community - contact the office and we will work on creating a program in your area in the future.  …

    « Click Here to Read More »


    2007 update on the Genetic Nondiscrimination Act (H.R.493, S.358) »

    Learn more about this important legislation and take action!. Genetic Information Nondiscrimination Act (H.R.493, S.358)  is a bill that will prohibit discrimination on the basis of genetic information with respect to health insurance and employment. It was introduced to establish basic legal protections that will enable and encourage individuals to take advantage of genetic…

    « Click Here to Read More »


    10th Annual Lori Anne Flanigan Golf Outing »

    June 2, 2008 - Rockaway NJ. The 10th annual Lori Anne Flanigan Golf outing will take place on June 2, 2008. Shot gun start at 12:00 noon. We hope you can join us for a day of sun, fun, good friends and of course good golf!  If you are not able…

    « Click Here to Read More »


    HCMA on NPR! »

    Listen to the MP3 recording from Tue, Sep 4, 2007 -- 10:00 AM.

    « Click Here to Read More »


    Suggested Pre-Participation Screening Questions for Your Children »

          Pediatric Sudden Cardiac Death                                                 Risk Assessment Form   Ask these questions (or have parents complete) at periodic times during well child visits: Neonatal, preschool, before/during middle school, and before/during high school

    « Click Here to Read More »


    Project "Get the Word OUT!" »

    Your chance to help educate the medical community about HCM.. A Call to Action - it is time to “Get the Word OUT!” ™    Have you ever thought to yourself “what can I do to help educate the medical community about HCM”? We know many of you have and we have created a program to…

    « Click Here to Read More »


    Preclinical HCM Study Seeking Participants »

    Researchers at Brigham and Women’s Hospital in Boston, MA are currently enrolling participants for a research study of Hypertrophic Cardiomyopathy (HCM).

    « Click Here to Read More »

    HCMA responds 
    to the Medtronic Sprint 
    Fidelis lead recall

     

    CLICK HERE for more information!

     

    HCM for Patient, Families and Interested Physicians 2nd edition

    By: Barry Maron, MD and Lisa Salberg, President, HCMA

    bookcover.jpg

    NOW AVAILABLE!

    To order your copy, click here!

    Search this site

     


    New HCMA Survey for Patients and Families

    Click Here for Online Survey

    Journal Articles of Interest to the HCM Community

    Signifcance of Papillary Muscle Abnormalities Identified
    SCA in HCM in the Absence of Conventional Criteria for High Risk Status
    Other Journals
    JACC - Journal of the American College of Cardiology
    Circulation - the Journal of the American Heart Association

    Information for the Media

    Includes Media Advisories

    Media Information

    Support the HCMA!

    Let the beat go on!


    Click HERE to order bracelets!

     

     

    Medtronic is a proud sponsor of the "Let the Beat Go ON!" campaign.

     

    Also visit Medtronic Foundation to see the wonderful work they do!

     

     

     

    Learn more about Sudden Cardiac Arrest and lifesaving treatments. Medtronic - What's Inside

     


    Good News Letters!


    From Linda S »

    I wanted to pass on some exciting information. My mother, 81 years old was unable to walk 25 feet without needing to stop to catch… »


    From Connie B. »

    Thanks for saving my life. »


    From Kim M. »

    Everything I have read and seen on your web site and received in your newsletters has been very helpful and informative.  My mother has HCM… »


    CREATED: 2004/11/24 LAST UPDATED: 2008/05/09